Posted , 15 users are following.
I’m looking for an effective treatment for MdDS. 32yr female. Not on any medications. Ongoing symptoms (more than a year) of rocking/swaying feeling when standing, sitting or lying down.
Symptoms dissipate when driving, and light walking.
1 like, 18 replies
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kevin37871 rachele62777
Posted
Have you seen anyone about this? I dealt with it for years 42 m from us.
kevin37871 rachele62777
Posted
This site hides replies for some reason it sucks. If you want to text me i might be able to help but my number is 804-543-0652
jennifer02804 rachele62777
Posted
Dear all,
I come from Holland and am diagnosed with Mdds since may 2019. The symptoms started in nov 2018 with heavy balance problems, fatigue, brain fog, nausea, serious headaches, anxious feelings, skipping heartbeats, etc. I couldn't walk at first, I had to crawl to the bathroom in the first weeks. I was very very ill. The doctors thought it was due to a virus so I had to deal with it and wait for it to go away eventually while it could take a few months they said. But it did not fade away, sometimes it even get worse for some period of time. The heavy sickness changed into an ongoing less severe feeling of constant motion 24/7. I had to quit my fulltime job. I tried to get back to work for several times but I was blown away due to increasing symptoms. I'm a 37 year old female. Dealing with this extreme bizarre diagnoses for over 2 years already. The only thing that eases the mind a bit is by walking on a flat surface or driving a car or boat, but not too long because the symptoms are getting worse most often after exposure to these activities.
The doctors in the Netherlands do not have any clue what to do with Mdds or how they can treat this. I feel quite alone as nobody understands what I am going trough. Except for my husband, he knows what affect this has on me and the daily life. I do not look ill but there is something unbelievable going on at the inside people can't imagine how hard and difficult it is to deal with.
We hopefully can be treated in the future! Let's pray for that. This syndrome is no nonsense!
Wish you all the best.
Maybe we can get in contact to share our thoughts.
Warm regards,
Jenn