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Effects on Sex

Posted , 12 users are following.

tony80950
tony80950

OK, the unmentional, sex.  Since getting PMR my sexual interest has become nil.  Neither with someone else or by myself I have no interest or arrousal at all.  Is this part of the PMR or a combination with the pred?  Would appreciate any input from others suffering this side effect.

Thanks,

Tony

2 likes, 17 replies

17 Replies

  • LisaCACO
    LisaCACO tony80950

    Posted

    well now you've done it smile. 

    not interested since my diagnosis of GCA (dec 2014), but it's all the meds and the pain, lack of sleep, oh and sleeping on the sofa, lol. definitely the last thing on my mind. 

  • pam41628
    pam41628 tony80950

    Posted

    Having sore arms makes having sex (or even cuddling) very difficult.
  • DebbieHurts
    DebbieHurts tony80950

    Posted

    I have the arousal though not as much as when younger, but I'm a widow and only have myself.  I'm too achy to do anything very physical, but gentle massage of the breasts makes me feel close to my hubby and doesn't hurt.  Wish I had someone to love, though.
  • tina-uk_cwall
    tina-uk_cwall tony80950

    Posted

    Hi tony, being a former journalist I decided to try my hand at writing a novel. I have the skeleton outline and hundreds of pages that I am still tweaking. I gave my husband  a copy to read and he told me that he thought it was very good but wouldn't sell. When I asked him why he thought it wouldn't sell he replied that there wasn't enough sex in it.  Not enough sex! I replied. No, he said everything you see or hear or read about has sex in it!  He then continued, as most of what writers write about is based on experience do you think we should do a little sex practice and then you can write about it. No! I replied, remember I'm a former journalist, so I'm used to making things up!

    regards, Christina 

  • EileenH
    EileenH tony80950

    Posted

    PMR hurts, pred has a damping effect on libido. Says it all I suppose!

    Quite like Christina the Journalist's take...

  • Mrs.Mac-Canada
    Mrs.Mac-Canada tony80950

    Posted

    My husband (66) and I (65) have always had a healthy, active sex life although I think part of it is that we only got together about 15 years ago.  The PMR or pred has definitely slowed us down a little. It is hard to want to do anything when you're not feeling well.  I did notice that at a lower dose of pred and feeling almost normal (except for the afternoon nap) that things picked up again.  If you're on a higher dose that might be it.  Also, I find a couple of glasses of wine go along way some evenings😉.  
  • julian.
    julian. tony80950

    Posted

    without medication, when turning over in bed took great care to avoid pain and screams, sex was the last thing on my mind.

    5-6mg pred impact not noticeable.

    First time I encountered a chronic condition was life changing. Metaphorically walking into a brick wall. I hadn't a clue what was happening. Mostly physical but the tiredness with high pressure work wore me down. PMR adds the side effects of pred and concerns about changing symptoms. Scary stuff.

    A book I found useful first time round, until I learned how to talk about life, was "Cry of the Damaged Man". Its a personal description of a long recovery from a traffic accident written by a doctor. Very different condition to ours but concentrates on the emotional journey.

    • Mrs.Mac-Canada
      Mrs.Mac-Canada julian.

      Posted

      We are really happy to have you on this forum.  It is almost like a group therapy sessionsmile.  We can share the happy and sad times.  Have a pity party every once in awhile, share the times we have the frustration and guilt for not being the person we once were and share the joy of people that have had great successes managing and overcoming this damn disorder.  This and all the while knowing there are fellow PMRers out there that will support us and provide such great information, it's a pretty amazing site. 

      I was telling my husband that it would be great to have a group for the partners of PMR, of which there are many husbands, so they can share with others experiencing life with their "new" partners.   I think it is much harder for men to expess emotional feelings and I think it's wonderful if you can discuss things openly with people having similar experiences. 

      I'm glad you found something that would help you through this and that you are successful managing your PMR and feeling well soon.

      Diana 

    • julian.
      julian. Mrs.Mac-Canada

      Posted

      thanks,

      I haven't a clue why men struggle with expressing emotional feelings but we do. Probably the same reason we don't ask for help in shops. Once the ice is broken it gets easier. And talking to people with the same problem is easier.

      PMR is certainly interesting to manage.

       

    • Mrs.Mac-Canada
      Mrs.Mac-Canada julian.

      Posted

      Bet you don't like to ask for directions either😉

      yes, PMR is a real learning experience. Maybe it is meant to slow those of us that often or always take on to much to slow down a bit and enjoy the things that don't require us to be "on" all the time.

    • EileenH
      EileenH Mrs.Mac-Canada

      Posted

      Q: Why were the children of Israel lost in the desert for 40 years?

      A: Because men wouldn't ask for directions even then...

    • julian.
      julian. Mrs.Mac-Canada

      Posted

      and I don't have to turn the map around ....

      plus, in Mongolia, every village had a track to every next village so directions were every which way.

    • julian.
      julian. EileenH

      Posted

      have to be patient (sic!) while I get the hang of this, I'm still learning ....

      DANGEROUS: What's for dinner?

      SAFER: Can I help you with dinner?

      SAFEST: Where would you like to go for dinner?

      ULTRASAFE: Would you like a glass of wine?.

      DANGEROUS: Are you wearing that?

      SAFER: Gee, you look good in brown.

      SAFEST: WOW!

      ULTRASAFE: Would you like a glass of wine?

    • julian.
      julian. Mrs.Mac-Canada

      Posted

      certainly was. A three year drive from Aus to Scotland, and back. PMR appeared in the last 3 months of the trip. Even with gps we had to ask. Directions that is, gps isn't much use for PMR. Saw lots of wonderful places and met lots of wonderful people.
    • EileenH
      EileenH julian.

      Posted

      Sounds a bit like a journey through Belgium or northern Italy...

      We drove over to Lake Como a couple of years ago. I think it was in Como itself that we had to circumnavigate several roundabouts about 3 times to find which exit we needed next. 

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