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Havent been on here for a while.
Had my bloods done 5 weeks ago and EGFR was 21, seems to have gone down by 1% every 6 weeks or so. Was asked to have them done 2 weeks ago and EGFR was 18. Had to have them repeated just incase it was a one off but was still at 18.
Its decreased much quicker than previously.
Have the specialist nurse coming out to me on 23rd to discuss transplant.
My problem is, the 23rd seems so far away.
Can anyone advise what will happen at this meeting please. My head is playing games with me and freaking me out now.
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