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Ehlers Danlos Syndrome, Sjogren's Syndrome, Pain but not severe? Do I have ED's?

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martha989
martha989

My younger sister of one year has Ehlers Danlos Syndrome, as well as my father, he is undiagnosed but shares the exact same symptoms of my diagnosed sister. Both of them live in pain, they have their good and bad days and their awful days when they can't really move at all because their pain is that severe.

I have Hashimoto's, Celiac Disease and Sjogren's Syndrome. For the last 2 months, my random and annoying aches and pains have turned constant and painful. So much so that I am having a hard time sleeping at night because my upper back, lower back, and hips hurt so much that I can't get comfortable. 

I've never thought that I could have Ehlers Danlos Syndrome (EDS) because my pain was never on their level. But on Saturday I noticed that my eyes were blue. I googled it and found that Blue Sclera could be caused by EDS. 

So my question is if it is possible for me to have EDS with less pain than they do. Or is it connected to Sjogren's Syndrome? I've googled it and found nothing connecting SS with blue sclera. I also read that it could be due to iron anemia, but I've had that checked recently and it was normal. 

Just wanting your guy's thoughts on this manner, thanks. 

0 likes, 2 replies

2 Replies

  • denise79180
    denise79180 martha989

    Posted

    Hi. You could have EDS also but you'd need a dr to test for that to confirm. EDS is very complicated and comes with many different symptoms. 

    Good to find out do you know how to move forward. 

    • martha989
      martha989 denise79180

      Posted

      My thoughts exactly. I'm just overall aware at how easily doctors right me off sometimes.

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