Eileen - help needed please!!

Posted , 6 users are following.

Hi Eileen

We all seem to rely on you.An unpaid job?!

I ended up in A & E last night with breathing problems. They said I appeared to have a bad chest infection. They have taken some of gunk to analyse (at last) and in meantime have given me 7 days of Amoxycillin 500mg X 3 times a day. They said I might need longer.

They said I should also really be taking 30mg Pred for 5 days and then revert to my normal dose (2.5, 0 alt days). I practically screamed in frustration and the doc eventually agreed that I should wait until the results of the culture are back. i will see my lady doc next Tuesday.

Well, Eileen, should I take that dose of Pred?? Will I be able to reduce immediately back to my usual dose after 5 days?? or is it different for us PMR lot??

My 88 yr old father who also has PMR, was erecently in hosp with nasty case of pneumonia and they did not increase his Pred.

If the culture comes back without bugs I shall be really worried. Am seeing ENT consultant privately next Wed, but wonder now if thats apppropriate.

We are off to france on 2nd Aug, and am worried about travelling with these breathing probs..

Another thing, years ago I was tested for Alpha 1 antytrypsin gene (to do with chest problems my husband was having at the time - he came up with 1 good and 1 bad (PiMS) and so did I. That gives me, I believe 80% of the stuff and my blood contained 1.2 (1.1 to 2.1 being normal range). I am worried incase acid reflux from stomach has been aspirated into lungs and that has triggered COPD as a result of that genetic fault. (smoking can apparently trigger it). What do you think? Do you know anything about that??

Thanks Eileen

Beev

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  • Posted

    Hi Eileen

    I hope you enjoyed the wedding - you picked a good weekend for it - what weird weather!

    It seems you need to have a specialist background to do translation really.

    I finally emailed my resp specialist with the last 2 test results as my GP hadnt (2 weeks later!!). I've heard back from her that no tests are called for at the moment and that people without allergies can have that reading (not what Ive read!) but that she is happy to discuss it with me at my next appointment.

    I bet it ends up being \"someone in her team\" I see next time, especially as I've just received a change of app time!!! I've got a suspicious mind!

    Even if the bronchiectasis hasn't been directly caused by allergy, it seems to me that it could be implicated somewhere along the line with my various problems. Also, from my research on the internet, even when people are \"idiopathic\" they generally have had numerous chest infections before diagnosis and have a number of things in their background which COULD have caused the lung damage. :?

    Thanks as usual

    Beev

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