Elective colectomy for UC

Posted , 11 users are following.

Hi,

i am wondering if anyone has had an elective colectomy and regreted it.

i am 27, and have had ulcerative colitis for 6 years (5 years diagnosed). I have 2 young children, work part time and study at an online university.

i have been on sulphasalazine since being diagnosed and used codiene to manage the pain during flares. While pregnat with both my children my colitis was basically non existant and other that the standard discomforts of pregnancy I felt fantastic, after each pregnancy however, my colitis has become worse.

Since the birth of my daughter 10 months ago I have been in a near  constant flare. A good day for me is around 10 bowel movements, all ranging from soft to water, and very painful.

i am currently dependent on prednisone to keep my symptoms at a minimum and the codiene is no longer helping with the pain. I recently was given 6MP to try, however I had a reaction to it and am unable to continue taking it. I have been told that this limits the remaining treatment options available.

i am strongly considering having an elective total colectomy in order to rid myself of the diease for good. I want my life back, I want to be able to enjoy my children and my husband, i want to be able to give them all my time rather than being stuck in the loo or curled up in pain. I want to be able to socialise again and enjoy my work. Basically i want my life back.

Every story I have read for people who have had a colectomy wish they had done it sooner. I really want to know if anyone regrets it?

i will be seeing my dr again in a couple of week so I am keen to arm myself with as much information as possible prior to that appointment.

my husband is very supportive and agrees that it is probably be the best option for us. When i spoke to my mum about it she yelled at me about it being a stupid idea, but she doesnt see the struggle I have everyday. 

All input is very welcome. smile

karen 

2 likes, 124 replies

124 Replies

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  • Posted

    Quick update. All still the same.. About to dtart investigations into a gyno problem that could be causing my issues such as endometriosis. Had my stay in hospital for tests which showed nothing.

    Fingers crossed smile

    • Posted

      Hi Karen, glad to hear u r having investigations and hopefully they will discover reason for ur symptoms fingers crossed . 😊

      As for me I'm very well thankfully. It's great to b back fully well which I really hadn't been for years and years. Managing stoma bag very well. More or less got it down to fine art and it's no mega bother thankfully 😊

      Hows ur little son now ? Mary Jo

       

    • Posted

      Oh, I am so happy to hear you are doing well. That is such wonderful news!

      My boy is great. He got those pesky tonsils out 3 weeks ago and is doing much better. The surgeon commented that they were amongts the worst she had ever seen.

      Everyone else in my house is well so I just need to get myself fixed so we

      Can get on with enjoying life.

      I am feeling very positive about finding a diagnosis very s

    • Posted

      Soon.

      Will keep you posted

      X

    • Posted

      That's good ...im glad to hear things are more positive all round and thanks for letting me know. It's nice to hear good news  😊 X

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