electric shock type pain

Hi there Jim

I haven't really got an answer to your problem - but thought I would reply to you anyway

I'm so sorry that you are stuck in hospital for so long - what an absolute pain - literally Hospitals aren't the quietest of places, and it's impossible to really get much rest there.

I suffer from CFS/ME anf fibromyalgia and mainly post on the CFS forum

(we have lots of fun on there - as we are rather a daft lot :roll: ) You are very welcome to join us - we have recently set up a chat thread where we just talk a load of old rubbish, but it certainly brings a smile to our faces.

I too, am hypersensitive to noise (and light and smell ) which is all part and parcel of the old ME - so I can appreciate the misery you must be suffering, though I don't get the shock like pain - penetrating noises just seem to slice through me and make me wince. If I am going somewhere noisy I use earplugs - Boots do a very good wax variety called Muffles, which can be halved and just pushed gently into each ear.

By not pushing them in completely,noise if just nicely muffled and makes things bearable. This may be of help to you (or not :? ) - you would obviously need help in using them.

I am sure you are probably right about the source of the pain, but I will do some googling and see if I can come up with anything of help.

Do hope you manage to overcome it somehow.

Take care

Thanks Katie

Since we last spoke I have seen the doctor and it is neuropathic pain I am suffering from., it is apparently a well recognised condition amongst paralysed people. Its strange that I have been in specialist paralysed hospitals frequently and have been pleading for quiet rooms and asking what am I suffering from and even posed the question on a paralysed web site forum (guess I should of come here first) for the last ten years.

Anyway I have been put on a drug called gabapentin and already my pain has been cut in half (I think) and I am not yet on the minimum dose and I can take 3 times as much if I don’t suffer side effects. I just might of found my miracle cure to chronic pain I have been suffering from all these years.

I went to your forum and was reading what you guys are going through I feel for you all and wish you all the luck in the world, at least when I ws at home and particularly bad I could ask my family to go out or be extra careful (ie not move at all) but it seems your pain is constant with no relief control whatsoever.

I could not find a posting from Katie so I am looking in the wrong forum or you have a different alias.(or I am thick)

Jim

Hi there Jim

I am so pleased that you have found something to relieve your pain

I have recently been attending a ME group and a pharmacist recommended gabapentin for fibromyalgia (which most of ME sufferers also have). She maintained that few GPs seemed to know about it so she is in the process of educating them.

It's really interesting to hear that it has helped you ...... next time I go to my GP I will ask if I can have it too! Anything is worth a try ..... I just loathe going to the doctors though

I have made hundreds of postings under katie k. (and sometimes Matron :nurse: :lol: ) you can't miss me :lol: Have a look under Chronic Fatigue Syndrome - pick any of the silly titles and I am bound to be in it!!

Take care

[quote:325eaa45ca=\"jimcr\"]I am paralised (T5) and noises trigger this electric shock type pain all through my body. The noises are shrill noises such as cutlery on a plate or drpped items on solid floors or even newspaper or magazines being flipped over someone coughing or sneezing and doors slamming and bins closing etc. I dont know if this is neuropathic pain but i read somewnere that pain can be apparent as an electric shock type pain which fits the bill exactly. When i search for noise hypersensitivity i get pages of hearing defect type answers but this isnt relavet in my case.

The pain gets increasingly werse as the day goes on untill even someone crunching a sweet can trigger a shock through my body. I am in hospital at the moment and dont know how I am going to get through it with all the noises going on particularly as its going to be a long stay of 6 months or so.

Does anyone else experience anything like this?

I dont know if its exclusive to paralised peaple either as i have searched and searched but cannot find anyone with the same trigger and symptoms.

For those of you that do suffer electric shock type symtems can it be relieved in anyway?

and does it sound like a neuropathic type problem?

Thanks in advance.

jim[/quote:325eaa45ca]

Hi jim

so sorry to hear of the pain you are going through,i suffer with neuropathic pain for over 3years now i had my leg crushed and the doctors said that they might have to amputate it ,they managed to save it but i am now left suffering with chronic pain ,i also get the electric shock pains,stabbing pains,burning pains,i also suffer with noise problems certain noises set me off,it likes irritates you and is hard to describe to people,i sometimes want to go somewhere quiet and lie down.I to are on gabapentin but because my pain became that bad they have also put me on lamotrigine,amitriptyline,oxycontin,which is a pretty strong cocktail.i have just come out of hospital myself after an emergency operation which is now number6.As you said jim you do not know how you are going to get through this you have to try and stay positive i know it is easier said than done,it is a constant battle every day to keep going but keep going jim.I attend the walton centre in liverpool it is a centre of excellence for pain management and is well known around the country your doctors should know of this hospital.Jim i would be happy to speak to you more and if i can help in anway Jim i will.

Hi scaffmanlong post

Sorry I took so long to reply I wanted to see how this treatment was working,

My dosage has gone from 900 to 1600 a day and I am still suffering, I really don’t know if I was having a placebo effect and the lower end noises weren’t so bad I will not know till I get home, I wanted so much for this treatment to work.

I had a small victory today, I have been educating the nurses to please close the bin that is in my two man room quietly, I have had someone put a big notice on the bin to please do not slam the lid and the nurses are very good but about 6 times a day the lid slams because they either forget through habit or they lose control of the bin. The first time I can handle the second time the pain doubles and so on by the 4th time I am screaming In agony (but never AT the nurses or anyone in the last ten years as I realise everyone does there best around me)

Anyway I asked the boss of the ward about 3 days ago to please change the bin to one with a pneumatic lid as this was the main scource of my pain,

Well this morning I had enough

Me Trever did you make equiries to change the bin

Trevor what bin

Me the poxy bin I asked you about 3 days ago I have had enough

Trevor well I can write to the trustees then I can get approval for the budget

Me well if you havnt got a bin by 2 o;clock I;m going home

Trevorthat’s your perogative

Well I happen to play poker for a living and I know Trevor is a gambler so I was in bed contemplating my next move, (at this stage I did not know if I was bluffing or not but like all good players you wait for a return then react to it maybe with a reraise)

I figured that if I started a discharge procedure the doctors would come involved and I would get my £100 bin (I even offered to pay for it at some stage). so after a while I phoned my wife and asked her to find out the self discharge procedure (unknown to me Trevor was on the other side of the closed curtain along with a couple of nurses)

Trevor what are you talking about

Me you shouldn’t be listening you loser you call yourself the ward manager you’re an arsehole I’m leaving today

Trevor calm down jim I’ve got your bin

Like all weak players with no hand he folded.

I guess the moral of this story is never sit at a poker table with me.

Its now about 10.45 pm and I have had the best day yet at this hospital

Jim

High Jim bloody good for you sometimes you have to force their hand(excuse pun)to get somthing done iam glad for you that this helped you and also i hope that they can get on top of your pain as it is no laughing matter.The hospital gave me some cream today and the main ingrediant comes from chillies and it has been used on horses to kill pain for when they jump over fences,well my wife could not stop laughing she said are you going to start jumping over the fences at aintree,i said not bloody likely i couldnt jump over my own shadow.when i was in hospital today i had to wait in the day room their where two kids in the room just playing but i had to get out of the room because i could not take the noise that they were making.the pain has changed me completley Jim i dont no about you but it also has its funny moments from time to time.How long do you think that you will be in hospital for? as they can be opressive places i always call them a neccaserey evil.Iam glad that you have got back to me as i was only thinking about you the other day i hope to speak to you soon and i hope that you can get some relief from the pain that you are in.Take care Jim , :D Pete