Elevated CK levels... should I be worried???

Posted , 32 users are following.

So I went to the ER yesterday, bc since Friday I have not been able to stand up for more than 10-15 minutes without getting so tired or light headed that i need to lie down. I have had off and on mild nausea and bad muscle aches in my back, stomach, and chest. The doctor did bloodwork which showed my CK level to be at 687 (normal is between 17-170). She said your levels could register high after a vigorous workout, but seeing as I have spent the last 3 days in bed, that wasnt normal. She said she wasnt offically "diagnosising me", but referring me to a rhemotologist to look into the possibility of muscular dystrophy.

Now I am kind of freaking out. I wasnt expecting that. I am a 33 year-old avid athlete. I have chronic muscle pains, but usually its always in the back, chest, stomach, or neck area... rarely my limbs. 

There never said what was causing my sudden lack of energy, light-headedness, and nausea. They said it could just be a virus but there was no way to tell and just sent me home. However, the possibility of having Muscular Dystrophy has me shaken. It sent me into a research mode while I wait for my specialist appointment next week.

I have found various causes for elevated CK levels-

* Heart Issues

* Muscular Diseases

* Tyroid Problems

* A Virus

* Vitamin D or B12 Deficiencies

Obviously, I am hoping for 1 of the later 2. The CK levels and my chronic muscle pains are the only thing leading her to suggest the possiblity of Muscular Dystrophy. Of course, it's not easy to put your mind at ease when you hear that.

Has anyone else on here expeirenced high CK levels before and know more about it? Is it possible that I just have a virus that has made me sick and weak the past week or so that is causing the muscle pain and CK level readings? Could it be something else?

Any input from someone who knows more about it than I do would be much appreciated.

Thank You.

 

1 like, 37 replies

37 Replies

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  • Posted

    I am going through the same thing my ckp levesl high 580 but the doctor thinking my coming from a urinary infection.
  • Posted

    scottymar10 i had a blood test Wednesday and found out today that my CK level was about 350. I have to have another blood draw tuesday and get results on wednesday. I sont exercise due to fibromyalgia so this also srunned me. Im getting mucle twitches and cramps and spasms all over my body even my eyelids. My dr had no idea why this was happening which was frustrating and alarming. I know what youre going thru. Im losing weight and im just sick at my stomaxh. I cant eat. I do have 2 folic acid deficiencies and havent been taking my meds because the script expired. Im sure im b12 deficient also because that goes hand in hand with folic acid. Let me know what happens with your situation and ill keep you updated if i get any other reasonings behind it. Do you take any statin meds for cholesterol? Thatll cause it too. Good luck and ill keep you in the loop.
  • Posted

    Scottymar10 did you ever have your test rechecked after a week? Thats what my dr did. It did go down to 150 but im still having muscle issues twitches nausea is better still am unable to do vigorous exercise. But just recently had an ekg come back abnormal. I had to wear a monitor for 2 days and then an exhocardiogram. So i saw the cardiologist and he said that i have a small sac around my heart and 2 leaky valves. Along with the abnormal heartbeats. (Pvcs) alot of them. But he said hes not going to do anything yet i see him again in 6 mos. But..my kidneys i think might also be having kidney issues due to what used to be chronic high blood pressure, prevacid, and the auto immune diseases. I was told by a medical professional yesterday that its extremely elevated that most times they go right back down. But its scary not knowing why this is happening!!! Good luck ro you please keep me posted. Prayers
  • Posted

    Hi there i am a female 32 yo, yesterday i woke and had a shower to find my right leg so swollen my pants were tight i instantly thought it was a clot but at the hospital it came back and my Ck level was greater than 5000 i had so much fluid by the time i left hospital it dropped to 2500 having my bloods tomor again im so worried i do alot of fitness however the week prior i had it all off they said a tear in the muscle im so worried and wondering if i should get a second opinion ???

    • Posted

      when i read people have heart problems i see the cardiologist in november because prior to this i was having snd still am lots of palpatations hoping its not related ???

  • Posted

    I too have elevated CK. Most recently at 718. One month ago, started to get discomfort in triceps muscles then spread to both calves which made walking difficult do to the flexion and extension of the muscles. I play "senior" softball, nothing strenuous. After a few weeks of calf pain, blood work showed my CK to be 550 and my AST and ALT to be slightly elevated. After a week of rest, retested and CK went down to normal. Still have discomfort in both traps by neck, both shoulders, and buttocks, along with forearms. Everything is bilateral and in the muscle belly, nothing in the joints. Yesterday, after playing ball again, my CK went up to 718. All other test are negative or normal ! My PCP thinks that I am over exerting myself, but that's not the case. It's a senior league and have been doing the same for 4 years without any issues. For some apparent reason, my CPK is being increased with even slight exercise. I now believe it's a virus attacking muscles, which I hope will pass ,or fibromyalgia, which is more common in women. My doctor is baffled as am I !

  • Posted

    i work in an hospital and had been dealing with fatigue for ever since my mid 30's . Every time I go to the doctor I get blood work done thinking maybe I was entering early menopause and that my hormone levels were off. but no everything was normal. so i learned to just to deal with the chronic fatigue and muscle soreness thinking maybe it was just age, or i was just over doing work and home activities. But one day at work, i was just so tired I started my shift and then notified my manager that I needed to leave because I couldn’t lift my arms because they were so tired. That day I went straight home and went straight to bed and just laid there and relaxed . The next morning got up, got ready and decided to go to the ER to make sure I wasn’t having a heart attack. When I arrived at the ER they did all the protocols to make sure that I was not having any kind of heart. they drew labs and they were shocked with the numbers that came back. So they requested for a new set of labs to be polled. Some things were elevated but mostly what was worrying was the CK levels were 9800. And just to let you to know , i am not an extreme athlete. I maybe do 30 minutes on the treadmill at a pace of 3.5 mph per. day. At that point they were worried about me going into renal failure and wanted to protect my kidneys. In order to do that they started pushing fluids through IV and I was admitted. I stayed in the hospital for a total of two weeks. It was just at the beginning of the Covid epidemic. note; i tested negitive for covid and this was before the vaccines were available. So just want to put it out there, neither Covid or the vaccine caused this high CK level. During my two weeks in the hospital i had every test done monitoring my heart, lungs, kidneys and my liver. I also had a MRI of the bicep muscles in my arm. Because they decided they were going to have me go up to the OR and take a piece of muscle out and send it in for lab testing. The pathology report came back saying that I was positive for McArdles disease. But later come to find out as an outpatient seeing a neurologist they did genetic testing and found that it was not possible , because the genetic gene factor was not present.

    i have had the following tests done EEG, EMG' s of the lower and upper body and MRI's of brain and from the neck to the lower spine, and x-rays done of all the joints. all tests come back pretty normal. But the EMG upper and lower do show history of muscle breakdown. And MRIs ruled out MS. All autoimmune blood tests have always come up negative. but I definitely show some type of autoimmune characteristics. my rheumatologist has given me a diagnosis of fibromyalgia with an unknown myositis. he started treating me with the following medication‘s. lyrica for the muscles pain and provigil for the chronic fatigue. I have to tell you I feel so much better. still some pain in the left arm but the fatigue is gone. Before it would take all my energy just working a shift at the hospital, and I would come home and basically go straight to bed and lay down and watch TV before I could fall asleep. I was just too tired to do anything else. Now I can live my life even after a day of work at the hospital. i have to say dehydration i think plays a big part. i have to make sure i get in at least 10 cups of water per day and eat healthy. Avoid processed foods for sure.

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