Elevator drop and sinking into floor sensations? I'm scared!
Posted , 6 users are following.
I've posted here before because seven months ago I got BPPV for the first time, which led to terrible anxiety. When the vertifo/spinning sensations were gone, I was left with an off balance and swaying feeling that lasted about two months. Then in September I got BPPV again, which outright terrified me. I couldn't get out of bed because I was so off balance. In November and part of December I was okay, but the off balance feelings are returning again. Now it just feels like I'm sinking into the floor when I walk. I've also been having dropping sensations when I lie down. I'm exhausted by 4pm and I'm having terrible back pain. Plus, I've developed a very strong fear of sleeping on my sides because I'm ALWAYS afraid of triggering my BPPV again. I'm just really anxious right now and it's interfering with my life. I just want to live normally. I feel like I haven't rested in so long and I'm tired.
0 likes, 4 replies
kate47167 vanessamg
Posted
I have had Bppv for 7 yrs comes and goes and never sleep on bad side
rita52071 vanessamg
Posted
LynQ vanessamg
Posted
I have had right sided BPPV for a few years now. The first time Imy doctor sent me to a physiotherapist who performed the Epley manouver and that fixed it for four years. Then I got it again more seriously. Again I tried the Epley several times but it didn't work. I had balance problems and an jerky gait as well as neck ache and other unpleasant sensations you nention. I was referred to a specialist who did lots of tests to confirm the diagnosis and performed a much more vigorous form of the Epley which involved triggering it. It was so classic that she called several junior doctors in to see it. She said that one appointment usually fixed it for 90% of people but some needed two a fortnight apart. However, it didn't fix me and I could not sleep on my right or look up to the right without triggering it. I asked for another appointment which kept being cancelled- our hospital and those in the local area had been put into special measures. I eventually got another after about 10 months but that did not work either. After trying again to get two appointments close together, I gave up. I have learned to live with it. I don't sleep on my right any more and I avoid looking up and right. I think it has receded somewhat as it doesn't bother me much now, but sometimes if I look up and right without thinking, I can feel it coming on again. The specialist I saw also said that it is self-limiting. But I still have it.
LynQ vanessamg
Posted
I forgot to ask if you have it on both sides? BPPV is usually one sided and can be confirmed easily by having it triggered by a doctor (when you are safely lying down!).
I ask this because there is a form of vertigo that is caused by a virus which is usually more pervasive. It is called labyrinthitis. This can easily be controlled until the virus has gone by medication such as Beccestem. You experience this all the time and not just when you turn your head in one direction. The first time I had BPPV it was misdiagnosed by one doctor. The medication for labyrinthitis does not work on BPPV.