Elevator drop and sinking into floor sensations? I'm scared!

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I've posted here before because seven months ago I got BPPV for the first time, which led to terrible anxiety. When the vertifo/spinning sensations were gone, I was left with an off balance and swaying feeling that lasted about two months. Then in September I got BPPV again, which outright terrified me. I couldn't get out of bed because I was so off balance. In November and part of December I was okay, but the off balance feelings are returning again. Now it just feels like I'm sinking into the floor when I walk. I've also been having dropping sensations when I lie down. I'm exhausted by 4pm and I'm having terrible back pain. Plus, I've developed a very strong fear of sleeping on my sides because I'm ALWAYS afraid of triggering my BPPV again. I'm just really anxious right now and it's interfering with my life. I just want to live normally. I feel like I haven't rested in so long and I'm tired.

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4 Replies

  • Posted

    Hi typical bppv sinking and dropping have u had an epley ?

    I have had Bppv for 7 yrs comes and goes and never sleep on bad side

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  • Posted

    Are you drs sure thats what it is???  because I was misdiagnoised......they say I have migraines associated with vertigo...no headaches at all........almost off of Gabapetin  but still on Depakoe.......been on the later since end of September....today is the first time in I cant tell you how long I feel good....except my back went out  so I am in pain with that........I am still going to get checked for vertical heterophoria....what exactly do u mean when you say you are sinking into the floor???  because I would feel like the floor is moving under me or at times I would feel like I not exactly sure where the floor is.....i will pick up my foot like I am stepping over something............Have you seen a neurologist???  etc??????
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  • Posted

    Hello Vanessa,

    I have had right sided BPPV for a few years now.  The first time Imy doctor sent me to a physiotherapist who performed the Epley manouver and that fixed it for four years.  Then I got it again more seriously.  Again I tried the Epley several times but it didn't work.  I had balance problems and an jerky gait as well as neck ache and other unpleasant sensations you nention.  I was referred to a specialist who did lots of tests to confirm the diagnosis and performed a much more vigorous form of the Epley which involved triggering it.  It was so classic that she called several junior doctors in to see it.  She said that one appointment usually fixed it for 90% of people but some needed two a fortnight apart.  However, it didn't fix me and I could not sleep on my right or look up to the right without triggering it.  I asked for another appointment which kept being cancelled- our hospital and those in the local area had been put into special measures.  I eventually got another after about 10  months but that did not work either.  After trying again to get two appointments close together, I gave up.  I have learned to live with it.  I don't sleep on my right any more and I avoid looking up and right.  I think it has receded somewhat as it doesn't bother me much now, but sometimes if I look up and right without thinking, I can feel it coming on again.  The specialist I saw also said that it is self-limiting.  But I still have it.

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  • Posted

    Hello Vanessa,

    I forgot to ask if you have it on both sides?  BPPV is usually one sided and can be confirmed easily by having it triggered by a doctor (when you are safely lying down!).

    I ask this because there is a form of vertigo that is caused by a virus which is usually more pervasive. It is called labyrinthitis. This can easily be controlled until the virus has gone by medication such as Beccestem.  You experience this all the time and not just when you turn your head in one direction.  The first time I had BPPV it was misdiagnosed by one doctor.  The medication for labyrinthitis does not work on BPPV.

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