Posted , 2 users are following.
Hi, i have been caring for mum for nine months she has an inflammitory disease, systemic - unknown exact name so far. She has become unkind and v. critical of me which is deeply affecting me emotionally. Has anyone experienced this? Please share if pos. k
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Dublin,_Ireland
Posted
I am so sorry to hear that you are having such a hard time with your mum. You do not mention her age or if she has other medical problems which might explain her mood changes. I have been on steroids for 4 months now to treat Polymyalgia Rheumatica, and I definately had some major mood swings at the start of treatment...I was either totally high or very low, and when I was low no-one could do anything right for me. I knew that I was being unreasonable but yet had no control over how I behaved :? I am now on a lower dose and find myself on a much more \"even Keel\"and hopefully more pleasant to live with !! Do talk to your Mother's doctors about the changes you have noticed...it may be the prednisolone, or may be something that warrants more investigation. My father had alzheimers for a few years before he passed away at age 82, but he could be terribly cruel and say the most awful hurtful things...we knew that he did not really mean them, but it was very difficult to cope with.I hope that you are getting a break from your carers role to enjoy some \"me\" time. The people who come on this site are all really supportive and a wealth of personal experience so keep on visiting and hope that things improve for you soon. best wishes, Pauline, Dublin
Guest
Posted
Guest
Posted
It is great to get feedback.
My mum is 72 and has been round the block. She was filling with fluid created by the inflammitory disease (first thought to be cancer- but so far no cells located) is now being treated with Pred. She stared on it at Easter. She would'nt have lasted much longer. She started to make great improvements - she is still v. ill and needs caring for to a point but it has been a great drug in that respect. Her dosage is down from 60 mg to 15 and then 10. She does seem to be affected when the dosages change. The docs want to get her on the lowest dose pos and supplement with other inflammitory drug. It is all v. complicated. I would say as the dose decreases she gets more depression and seems to feel pains. Is this normal? thank k
Guest
Posted
Due to you mentioning your mother responding well to steroids, it might be wise to consider that she may have vasculitis? Vasculitis is the main name given to inflammation of the blood cells in the body. I myself have Churg-Strauss Syndrome (one of the rarer forms of vasculitis) and steroids saved my life. I'm still on them two years hence. I too started on 60mg and am now on 6mg per day. My mood swings are very debilitating and it's really not easy to live a \"normal\" life whilst on these tablets. I get periods of great depression which I never used to get prior to my diagnosis. I take it day by day as each day is different. I just keep telling myself that the tablets saved my life.
Symptoms I had before diagnosis were late onset asthma (worsening despite every kind of inhaler you could think of), aching limbs to mention but a few things.
An eosinophil level test this will show if there is inflammation in the body and whether vasculitis is present. This is a VERY serious condition and is life threatening.
I wish you all the very best.