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How are any of you dealing with the emotional component of the symptoms and problems with LS and related diseases? You can't talk t o friends about this, barely anybody, in fact. This problem has nearly ruined my life and I'm so upset. I am not dealing with the stress very well and the thought of being permanently bedridden from the surgery to remove all the skin and the resulting permanent catheter and ostomy, not to mention the pain is about driving me insane. There would be no quality of life there and certainly no going to work anymore. Anyone have a suggestion? Tried church, pastors, counselors, got nothing.
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