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Emuaid

Posted , 8 users are following.

debi14820
debi14820

Ladies I want to let you know that Emuaid is not as innocuous as it seems. I've been using it for 3 weeks and now I have red, raw irritated skin. Two Gyn doctors have told me it will take several weeks to heal this! So just be aware of this. It's not a miracle cure! I have proof of that!

4 likes, 21 replies

21 Replies

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  • hope4cure
    hope4cure debi14820

    Posted

    Many of the so called creams on the market that put claims to help LS especially if just herbs mixed will oils have made me weary over the years, so sorry that this has created more to cope with. I have used diaper cream for years which help dry the up the patches as maintence . Foam steroid or steroid creams is the only successful treatment used sparingly. 
    • debi14820
      debi14820 hope4cure

      Posted

      Yep. I'm real leery now of posts that state this or that cream cures LS. Maybe for some it works. But from now on I'm sticking with Dr. recommended creams. And no, I had not told my doctor what I had used until the visit was over.

    • janice67377
      janice67377 hope4cure

      Posted

      Thanks for the heads up on the diaper cream!  Helps a lot for me when areas get patches forming.  Guess that is an old remedy that has worked on the sensitive areas on baby bums!  I use sparingly as it coats the area to a point where you almost need soap to get it off!
  • janice67377
    janice67377 debi14820

    Posted

    About all the creams, ointments and meds...I've found that you don't need to apply everyday.  I use Emuaid...regular strength, not extra strength.   I use it only when I have a tear or rubbed area only once, then I use Virgin Coconut cream to keep softness to the skin as it heals and a very light coating of Desitin to keep dampness away.   Give your creams a break too....cleaning the area with just warm water, no soap.  Dry.  Sleep with no panties.

     

    • debi14820
      debi14820 janice67377

      Posted

      Thanks. I will try all that you have suggestions. Prob later when blisters are gone. Thank you. Yes I do sleep with no drawers on. 😂

  • TexinSF
    TexinSF debi14820

    Posted

    I think it really depends on the individual. Emu oil works for me but not as well as essential lavender oil. That works really well. Coconut oil makes me too hot down there and causes me to itch. Borax is a miracle powder.
    • debi14820
      debi14820 TexinSF

      Posted

      I guess now I'm afraid to use anything! The blisters are very painful and the Clobetasol makes them hurt even worse!!

  • sandra01720
    sandra01720 debi14820

    Posted

    What works for one, may not for others. Many on here find coconut oil helpful. It irritates my skin. Emuaid has been SO helpful to me but obviously it doesn’t work for you. It’s trial and error and the product that is so helpful may suddenly cause irritation. Rotation of products seems important. 

    I do find Emuaid sometimes irritates my clitoris. As does steroid cream. To get on top of clitoris soreness I need to use steroid ointment versus the cream. With time you develop a bit of a pattern that works (sort of).  In the beginning it’s confusing and scary and hard. 

    Hang in there. I don’t think anyone should claim to have the cure for LS.  

    Unfortunately, LS has flare ups. It can feel like it’s gone but it’s usually only a matter of time till it rears it’s ugly head. It helped me once I accepted my condition.  Took awhile and I was a MESS  about it for quite some time.  

    I still struggle with it but it’s easier than it was. 

    • debi14820
      debi14820 sandra01720

      Posted

      Thank you Sandra. That's been very comforting to me. Sorry for your difficulties though. I'm very depressed by the whole med/ointment thing. What to use when and dealing with constant pain from blisters and reaction of Clobetasol on blisters! What can I do to heal the skin so I can use Clobetasol safely!! I'm so lost. Debi

    • sandra01720
      sandra01720 debi14820

      Posted

      I think many of us start out the treatment plan with some trial and error. Things not working etc.  I panicked a lot at the start. My LS simply exploded for awhile. It was terrifying.  But with time, I believe you will figure out what works etc. 

      Have you tried emu oil?  I found it to be gentle and it worked well. For awhile. But I start reacting to almost every product eventually, but can go back to them again. Coconut oil is the one that comsistantly gives me trouble. Very disappointing as so many seem to have success with it. 

      Don’t despair.  This forum helped me so much after my diagnosis.  I’ve learned far more on here than from my gynogolgist. 

    • sandra01720
      sandra01720

      Posted

      Oh and... clob is very strong. My gynocologist has me on a weaker steroid. Maybe that would be helpful?  Also, ointment seems to be better tolerated than cream. 
  • debi14820
    debi14820

    Posted

    I have been told by two Gyn doctors that it could be a very bad allergic reaction. So it may NOT be Emuaids fault. But again, it's not a definite easy fix. Just be aware of this! Now I can't use my Clobetasol to keep LS at bay. Not till the blisters are gone. And I have a tear, so I'm in tears. This is very bad pain. 😢😯

    • Sedg
      Sedg debi14820

      Posted

      Oh Debi sweetheart I am so sad you are in pain 

      Bliddy ugly sneaky painful 👹LS 

      Sometimes Clobetasol is too intensive to treat LS. Even during nasty flare up, I learned this from experience   

      My consultant Prof Kehoe advised me to use Betnovate ointment, which is a notch down from Clobetasol and for me it worked. Almost immediately I had relief    Debi maybe it could work for you too 🙏🏻 

      Sending love x

    • debi14820
      debi14820 Sedg

      Posted

      Thank you very much Sedg and others here for your kindness. It's so confusing to know what will work and not cause more pain. I am going to ask my Gyn for the Betnovate. Maybe that will not burn but keep the LS at bay. My tears have stopped thanks to your compassion Sedg and all of you that responded to me. Thank you. 💖💖?

    • debi14820
      debi14820 Sedg

      Posted

      I have asked my doctor for a different prescription med for the LS. She said next time I come to see her she wants to discuss other options too. That will be next week. I did show her the Emuaid, and coconut oil.  She advised me NOT to use the Emuaid as it has tea tree oil in it which can cause allergic reactions in some people I have also told her about other "aids" like V Magic. She asked me to hold off on all supplements until we get to the bottom of what is causing the burning and blisters.  So for now, I will heed her advice. I don't want to be bumped to yet another doctor.  I like the one I have.  But if things don't change... I'm moving on and trying other OTC! I'm going to ask her for Betnovate asap.  Thanks Sedg.  I appreciate your compassion.  smile Debi

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