Encephalitis or intercranial pressure (desperate for info, maybe save my life)

Thank for the reply, well it's pretty hard to do stuff when youre sick as your probably know. I 've had all basic tests, problem is the doctors, for example my family doctor said he can't do any tests (only tested for basic hep, hiv, cbc etc. but i do what I can and I wen through all tests and found possible irrregularities but said he can't test no more. He got really offended when I said aren't you suppose to help me, so that's how alot of docs are in toronto canada. I have had to really work ind loops to get the tests I have had so far though I have crazy symptoms that you can see but don't really show to much on normal blood tests. My symptoms have changed and on my second neurologist is worried to give me lumber puncture because she thinks I might have intercranial pressure and causing bad damage. How did you get diagnosed with this and what disease was it if you dont mind me asking? I have got so bad so fast, can barely stand up today. Hard to type this, but any info would be grateful as I am prob close to be hospitalized even neurologist kind of agreed but she is waiting for someone to give second opinion (she;s fairly young but great, even calls me at the office and office is in hospital)

I hope you will get into hospital and they would find something.

they dont do much, just basic blood tests, nothing shows they do nothing, been through this when got sick. when you get sick you really learn how messed things are up, look at things totally different now

other question to how did you get diagnosed with ICP, because for some reason my neurologist afraid to do the lumber puncture, she is awaiting a second opinion. i have had mri and CTA on head nothing shows. Also if it is ICP, should I be very careful in what I do for example don't try to walk to much (u know i am tempted just to see if it's all my head, foolishly optimistic), or like going for a beer over holidays?

What about your liver tests and vitamin B12?

Did you meet any chemicals recently? Drugs? Gases?

liver blood tests basically normally, slight elevation only over the normal range. I l looked at hopitsal records and my b12 was high and they failed to mention this and my ESR rate is always at a low 1 five times..so i am going to get b12 tested monday, do you know what this can mean?no i haven't even gone for a beer over the holidays and dont do drugs. Looked at the gases angle, i got tested for c02 poisioing but i dont think there's a test if you're exposed to low levels. ay thoughts on this i am open. Been in bed since august except to go to the doctors. you wouldnt believe how hard to it get tested here for anything even if you want to pay, I had to go to 5 different doctors to try to get a referral so i can go pay to see if some long shot I got heavy metal poisoning. Huge little fight with family doctor because he wont test for nothing except very basics, its crazy you have to find a doctor and get tests maybe for a couple things , then on to the next one..you can just look at me as see head swollen on temple, lots of physically stuff to know. I was going to emerg to same hospital when this all started on the ground gasping for air hyperventialing for over a month in sept, had tar stool, skin cleaning colour, couple lovely ambulance rides nothing shows on their simple normal blood tests so they do nothing except on CT scan. I didn't know much about hospitals, healthcare system and what tar stool was and so on before I have started educating myself..when you go see a doctor here, so I went that hospital like 8 times in a month causing breathing was so bad..I have access to hospital records so i looked at the reports and doctors there out their remarks, thinks i am having pankick attack and so on when I wasnt stressed and very socialable, woke up like this. and another doctor put my head swoolen is tmj, without xray or diagnosis..so breathing systems went away but i have had to emerg few times over the past couple months for other severe symptoms and the hospitals look at the records at doctors comments. So i had to pyschologists and get letter stating it is not panickk attacks and to oral surgeons to say it not tmj. so if i ever have to go emerg now i bring these letters, this is how crazy n messed up my experience of canadian health care system is at least in toronto. all i am trying to get proper care, and have to deal with this while its hard to do anything..they dont do any tests privately that invasive or serious, i have tried with private companies to get an mri and so on..it's been quite eye opening experience to canadian health care system, you have basically find holes in the sysstem which i am starting to know how to do get tested

had to get that off my chest, i was even looking to maybe pay a professional of so kind to help me and give me guidance where to go, what specialists to see..

Hi,

Which one of liver was slightly elevated?

Best Regards,

Przemek

Hey sorry about that long message I just finished fam doctor that day was end of my rope, it's very hard here to get a new one, process an tired of running around sick doc to doc..the ALT was raised slightly just before I got sick in August with a score of 51 with normal range - <40, then ALT has been normal on other tests until last test for it Nov 27, 2018ALT48 U/L- <40, had ultrasounds done both times, has blood tests on albumin,bilirubin, AST are within normal limits, second test states i have a mildly fatty liver, i am wondering if there are better tests like mri that would show liver better? maybe you can find something in ultrasound reports to look for, was in alot discomfort during them

first ultrasound as follows: sept1 one:12115205 - 01 Sep 2018 - US - Abdomen Limited Study REPORT TARGETED RUQ ULTRASOUND Sonographer: MK Indication: Epigstric discomfort (difficult to read requsition). NYD. Patient states recent dyspnea, fatigue, dizziness and discoloured stool as well as epigastric pain. No fever. WBC normal. Date of previous US or other relevant tests: No previous Quality of scan: Average to poor due to overlying bowel gas FINDINGS: Liver: 13.2 cm (predominantlyscanned intercostally). Grossly normal. GB: Normal Intrahepatic Bile Ducts: Not dilated CBD: 0.4 cm, Normal Pancreas: Obscured by overlying bowel gas. Rt Kidney: 9.3 cm, Normal Bowel: Unremarkable Intraperitoneal Free Fluid: None. IMPRESSION: No evidence of cholelithiasis, or acute cholecystitis Assessment of pancreas is limited due to overlying bowel gas. Normal right kidney with no hydronephrosis.Dictated by: ALFRED SEMDictated on: 01 Sep 2018 Transcribed on: 01 Sep2018 by SR

Second ultrasound nov 27:

ABDOMINAL AND PELVIC ULTRASOUND:

Clinical history: Upper quadrant pain. L>R. intermittent ALT 48. Pl assess liver, spleen, kidneys,

Comparison exam: None

FINDINGS:

Technically difficult study due to patient's inability to take a deep breath.

Mild diffuse increased liver echogenicity in keeping with mild fatty infiltration. No focal lesions. Smooth capsule.

Thin-walled gallbladder but no stones. No biliary dilatation.

The pancreas is not visualized. The spleen measures 12 cm.

Normal size, shape and echotexture of both kidneys.

The bladder is gross unremarkable. The prostate not well seen.

Normal caliber abdominal aorta and patent IVC.

No free fluid.

INTERPRETATION:

No cause for abdominal pain identified. Mildly fatty liver.

Hi,

"discoloured stool" is not in line with normal bilirubin. Of course it may fluctuate. I get jaundice after certain herbs and drugs or even lack of sleep or stress of any kind.

A little jaundice is present all the time actually, my lowest total bilirubin value was still just above upper limit. 2x upper limit usually.

"Mildly fatty liver" is a sign something wrong is going on. It shouldn't be acute or serious issue but if chronic?

If you want spend some money take MRI liver scan or ask for it. Just for sure - eliminate physical changes.

Still disgusted about health care in your country.

If I want MRI scan I go and just buy it. It cost about 1/2 of minimal month salary of full time job.

I wonder if I should take my MRI liver scan. Despite the USG was ok a few years ago it is quite low quality check.

Pozdrawiam,

Przemek

What country rare you in? it's because it is free for most things here, and doctors use it as an excuse to be lazy alot of times (just take the cheque) or afraid to be accountable (seen a few docs want to help, but afraid so they d a couple tests). I am going to start recording some of these conversations I have with doctors, you wouldn't even believe it. Free is not always good if very little private healthcare. I was very unaware how bad it is, until I got sick. Alot of sick people if they can afford it go to the USA and pay for immediate stuff and come back and wait out th system for other stuff, but that's ALOT ! Tomorrow I am going doctor shopping and try to get MRI on stomach, My mother has sometimes comes lately and seems to help. I don't want to manipulate the system, i just want proper care. i have severe stomach pain off and on since this started, along with a month n half tar stool which had to be internal bleeding, That stopped like a month and half ago, blows me away hospital never game me a CT scan or MRI. At the time i didn't know anything, and ya I would invest in mri if you can afford it

Some exhausted by war and german then russian occupation in the middle of Europe: Poland.

CT is even cheaper 50$only.

But theses scans may be done just for sure. I think it may be rather parasite or biochemistry issue.

Best Regards,

Przemek

please ask them to run a battery of EIA tests. this will find a specific fungus...you may have something common like Valley Fever but it has desimenated . it's in ur blood. many fungals are invasive now. mold for instance. also Candida and toe nail fungus too.. the azole antibiotics address fungal infections. get to an infectious disease Dr. I had many of ur symptoms I cld send u pics that wld curl ur hair. and I was tortured by Drs for decades. reg blood tests showed nothing so I wasn't treated or worse they referred me to mental health. I knew I wasn't crazy. I researched and treated myself and FINALLY was able to find the answer.my issue was the disseminated Valley Fever