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End stage Achalasia

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Nettie_Noo_Noo
Nettie_Noo_Noo

Hi Alan, would you please point me in the right direction as to where i would be able to obtain detailed information regarding end stage Achalasia in order for me to copy please

Many Thanks Jan

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0 likes, 3 replies

3 Replies

  • AlanJM
    AlanJM Nettie_Noo_Noo

    Posted

    Hello Jan

    The booklet is no longer available through the Oesophageal Patients Association website, but you can still download it by googling A Patient's Guide to Achalasia from Free Ebooks.

    The London Achalasia Meet Up group (again, one to google) can be very helpful.

    As for medical advice the main surgical centres for Upper Gastro Intestinal problems are the best place to go. If you let me know where you are based, or where you have been I will try and help.

    My email if it helps

    Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

    • Nettie_Noo_Noo
      Nettie_Noo_Noo AlanJM

      Posted

      Thank you Alan, it is an indepth article that i need that explaines what end stage achalasia patients have to endure. My oesophagetomy has been put on the back burner sadly as, my abdominal distension was bladder cancer for which i am being treated. Due to the change in circumstances my PIP award was cancelled in late May so, im as mad as mad can be and, intend on hitting this tribunal with everthing ive got. I also have representation. Kind regards

    • AlanJM
      AlanJM Nettie_Noo_Noo

      Posted

      I am sorry to hear about your troubles.

      I d not think I can put in a website link on this site, but you could google 'End Stage Achalasia - Medical review' or

      International Journal of Surgery, Volume 9, Issue 3, 2011, Pages 204-208

      or Achalasia: A Systematic review John E Pandolfino and Andrew Gawron

      I do not know whether this will help or not; the journal articles do tend to be very specialist and technical.

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