End stage COPD
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Can any one give me advice on end stage COPD please, it's my husband has this nasty disease, he's very poorly at the moment. What can I expect from here on in, honesty would be appreciated.
2 likes, 29 replies
broadsword susan71068
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I doubt that anyone here can really give you particular advice for your circumstances. While COPD is not reversible, there are a number of medications that might help and many people live for many years but like any other illness it depends on individual circumstances.The key for this and to answer your own specific questions will be a dialogue with your husband's GP. He may be under a respiratory consultant or have a respiratory physio. These are all good sources of information. If you are not getting that support then do push for it and do not be afraid of asking for what you need. By asking for honesty, I guess you have a number of fears about what the future holds. That future will vary greatly from person to person and that is why I hesitate to be more specific. It is not a wish to avoid honesty or candour but a real hesitation in giving you advice specific to your needs. If your husband becomes acutely unwell and is having real difficulties breathing , then do not hesitate to call an ambulance. Do not wait for a GP appointment, days ahead.
I feel for you and your husband and hope you soon get answers that can support you, with that greater knowledge of your husband's condition
susan71068 broadsword
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not taken out of my hands. Truly heartbreaking watching him become a shadow of the man he was, so frail now. I don't want him in any pain there is no need for pain these days x
broadsword susan71068
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I am sorry your husband sounds so unwell. It must be very hard for you and my thoughts are for you both. I know you want to keep him at home but if the treatment is not taking early effect and he is so unwell, please do consider calling for immediate assistance to help manage his obvious suffering. He may need further medication/ oxygen etc which may not be available to you at home and may benefit him. I know he has only been out of hospital,a week, but readmissions are not uncommon and often needed if progress is not maintained.
susan71068
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trish40354 susan71068
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I can't help you with your question but do want to send you and your husband a big hug x
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cofalot susan71068
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love cx
jeannie4243 susan71068
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Just read your message,as i have been helping my daughter to move this week. First of all may i say i have read the replys, and i think it is lovely all the care, thought and support every one gives i think when you are going through what you are it helps a lot. Secondly i would like to say i know how you are feeling as i have and am going through it with my husband Joe who is 76. Last May (2014) he was rushed in to hospital with pnumonia, put in I.T.C. and i had to do a D.N.R. for him. And to be honest from then until 9 weeks ago he has just been in and out of hospital with bacteria infections and Psudamonas. And like you i kept thinking the worse. But after a few trips to hospital and going over the same old things, i listed read up and got all the information i could, then i told them what i wanted doing. Because at the end of the day you know your husbands illness better then anyone. It did take many months, and Joe had two bad falls one which took 22 stitches (he is diabetic to). But slowly things have started to work.he has ventolin nebulised 4 times a day, clomycin nebulised 2 times a day, spivia inhaled, ventolin, Seretide 500 inhaled twice a dayand carbosystin 2 twice a day also oxygen for 16 hours a day. And i just have to watch everything, as our consultant says different people have different symptoms of showing a infection, so i am always asking how he feels have a thermometer at hand. And i have found this patient line of great support. I do wish you and your husband well, let me know how things are going. i will be thinking of you
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