Endless Shaking and GCA
Posted , 12 users are following.
Fatigue and shaking. For the past 48 hours, all my body has done is shake from head to toe. Wondering what this is about. Is this a flare (I've been at 40 mg for 10 days now I think), or is this just my body having fun for whatever reason? I've had shaking before (I'm also taking gabapentin for peripheral neuropathy) but nothing like this in a long time.
4 likes, 14 replies
Oregonjohn-UK LisaCACO
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Best of luck
Gymjen LisaCACO
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LisaCACO Gymjen
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MrsO-UK_Surrey LisaCACO
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tina-uk_cwall LisaCACO
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LisaCACO tina-uk_cwall
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I woke up this morning at 3am shaking...freaked the cat out since he was trying to sleep next to me. I can stop it if I hold my breath or sometimes if I clench my muscles, but it quicky resumes. Funny because I just had my blood tests and they were lovely (of course we know that doesn't prove anything but it makes my rheum doc happy :D). And it's making it pretty difficult to do my cross stitch-I'm told by my family that it's pretty amusing to watch me try to get that needle in that tiny 40 count linen hole each time).
I'll give things another 12 hours or so and see what happens. if I'm still shaking at the same rate I'll ask her what's up. thanks ladies.
pat73046 LisaCACO
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LisaCACO pat73046
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anyway I'll go back and crunch the numbers. it may be that I need to supplement with a banana or two now that i'm shifting to real foods. Pre GCA I used to be on a slow release potassium supplement because of the topamax I take for migraines, but that all corrected itself. Things may have gone wonky again. Thanks for the reminder.
charlie44644 LisaCACO
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You should contact the doctor who put you on gabapentin. Shaking is a common side effect of the medicine and apparently can go on for days.
Charlie44644
jean05221 LisaCACO
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I have GCA and have been on Pred 60mgs since July 2014.
A few years ago for a previous attack of GCA I shook on 40mgs. I couldn't write legibly or hit the right keys on my lap top.
This time I shake uncontrollably if I take 60mg in one dose. My shaking is considerably reduced if I split the dose 50mgs early morning and the other 10mgs about mid-day.
Please do speak to your GP as your Gab may also be a contributing factor.
All the very best to you.
pat38625 LisaCACO
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jan21306 LisaCACO
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EileenH LisaCACO
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LisaCACO
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Clearly my adrenal glands are just shot which is normal on the high doses of pred that I'm taking. I think the extra stress of the ankle injury (tendonitis) plus whatever I was doing this week (getting my kid off to camp, then dealing with her disappointment as it was rained out each day), was just a wee bit too much. I'll need to be more careful in the future.
I'll let my doc know about all this-she may want to do some blood tests. of course every time they stab me I'm at risk for superficial blood clots. *sigh* Before all this I saw my doc about 2x a year and emailed her 2x a year. This shift to "patient" is rather an uncomfortable one, esp when most of the "answers" from the doctors are "I don't know".
right now I have very mild occasional shaking, which is normal for me. I just woke up and I'm waiting for the pred to kick in. I've also altered my pred dosing a bit. before I was taking 25mg and then 15mg, but I'm going to try 30 and 10 to see if that does anything. Maybe my body needs just a wee bit more when I wake up. I love the guesswork involved :D.
Thanks to everyone for their input. All of it helps me put the pieces of the puzzle together.