Endo? Polyps? Any ideas?

Posted , 3 users are following.

Hi, I'm a 29 year old, never been pregnant female and im at my wits end in need of opinions...

Ive been having pelvic pain a number of years. Always a week or so before my period woukd start; I'd be be in crippling pain for 4-5 nights.

I saw a gynecologist once who said she suspected endo. She said she'd arrange a scan. That got lost in the ether. I saw another, a man that passed it off as ibs. I gave up.

I moved and the pain continued but getting a referral still seemed impossible from my gp not filling out a form correctly to another just not caring.

October last year I started bleeding and having terrible lower back pain. This persisted until January. Non stop heavy bleeding. A new Dr finally got a referral but it takes time. I started soaking through a pad in 30 minutes. I went to ED.

I was put on progesterone. It stopped it but the pain redoubled. I was in agony.

I had an ultrasound shortly after and they weren't sure as my lining is too thick but she said perhaps a polyp hiding there. I'm still awaiting the followup.

Since then I've stopped taking progesterone - the pain was too much. I still get pain, particularly after orgasm, be it penetrative or not. I bleed slightly after but nothing major. My periods have been awol since. 2 months and nothing except an occassional pink watery discharge with specks of blood once every few weeks.

Pain continues. Hard to lay on my side sometimes. Been tired and naeusus a lot. I feel like my stomach is bigger but s**t, may be in just fat and have had some rectal bleeding.

Should I go see my gp? Here in nz you can't just go see a gynaecologist and the wait list is massive so it could be months before the referral goes through; but I'm starting to get really scared something is wrong...

Do you think endo?

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  • Posted

    Hi Frefie,

    Sorry to hear about all your issues. I have been through almost all the same symptoms. I saw my gyno in Australia for over a year and we tried out different pills, which I had also done with my gp, and then resulted in going in for a Laparoscopy surgery and found I had stage 2 endo. Everyone will have different opinions on how to diagnose and whether to have the surgery. In my case I did multiple tests via ultrasounds, MRIs etc, but nothing showed, not even the massive cyst that was ready to rupture on my left ovary. So I was really glad I went in for surgery and got it all removed and taken care of. But again, each to their own.

    I moved to nz after my surgery earlier this year, and have seen a gyno here since then for my post surgery medication. So it is possible to see a gynaecologist within a month or so in nz, but i suppose it just depends on where you are located. And mine in Auckland wasn't great, so I won't bother recommending her, she just gave me my repeat for my drugs and I was on my way.

    I would highly recommend going to your gp and asking who they would suggest for endometriosis, and for a referral to a few gynaecologists, so that you have the option incase some are unavailable for a while. That's what I did in aus when I was desperate, and I saw the top specialist in my city for endo. So there might be someone like that near you, it's best to research and ask. If they will be a few months to see, then ask the receptionist if there is any way they might be able to squeeze you in, as you're desperate for some help. I did that and I got an appointment within 2.5weeks. 

    That's the best I can recommend for now, and I hope it helps, but if you have any more questions, feel free to ask xx

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    • Posted

      Thanks so much. I am on a wait list but it's been about 2 months. Last time two trips to ED sped up the process but that was when I had DUB. I'll make an appointment with my gp though and see of he can't push it or... something. Can't afford private rn so it's the best I got. Thanks again for your time.

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    • Posted

      Yes, you are going to need to be assertive and push push push to see the doctor. Yasmin's suggestions to get names for several gyns & for top endo specialist is great. Call all & make appointments with each if the system lets you do that. That way if one cancels you've already got another lined up.

      A laparoscopy is the final determinant about endo. It's been the final determinant for all the 40 years i've dealt with endo. Scans are not conclusive. Maybe in 5 years they'll have some test that sees inside the area as well as human eyes using that camera. Even then, the scan might not be able to see tiny spots scattered all around. The human eye with that camera can explore & find those spots.

      Push for your health as you deserve proper care. Hope you get to see someone soon.

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  • Posted

    So I figured I'd give an update; I've searched forums a lot and it's sad when I find someone with similar symptoms and they don't give any resolution.

    The ultrasound found a polyp; I'm now awaiting surgery to have it removed and biopsied. Whilst they're there I'll have a Hysteroscopy to check for Endo.

    I did have to go back to my gp and tell him what was happening and he pushed for a faster referral, otherwise maybe I'd have been there forever.

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