Endolymphatic Hydrops progression to MD

Posted , 4 users are following.

Hi everyone. i had two instances of hearing loss about two years ago about 4 months apart. First was hearing loss with tinnitus, fullness in both ears. second was the same but only in one ear. no vertigo either time. I havent had an instance since and i dont restrict my diet. the doctors cant seem to agree on what happened but they say it may be endolymphatic hydrops. i cant seem to find any info about the chances of this progressing to full MD. Any info would be helpful.

0 likes, 3 replies

3 Replies

  • Edited

    It says it is Menieres

    Primary idiopathic endolymphatic hydrops, known as Ménières disease, occurs for no known reason. Secondary endolymphatic hydrops occurs in response to an event, such as head trauma, allergy or an underlying condition, such as an autoimmune disorder.

    You are lucky it seems.

  • Edited

    Howdy,

    I have bilateral Meniere's Disease and it started with having one blocked ear in 2015. I was convinced that it was impacted ear wax that need to be removed by a specialist (ENT). To my surprise, the ENT found no ear wax at all. I shrugged it off and figured it would sort itself out in time. I then started to have cold sweats (body sweats) a couple of times a week almost like my body was fighting something like a bug. In June 2017, I was sitting at my desk at work and began to feel nauseous, afraid that I was going to have vomit. I stood up and instantly knew something was seriously wrong with me. I barely made it down the hall to the bathroom, staggering like a drunk and experienced violent rotary vertigo with vomiting and diarrhea for 3.5 hours. There was also a roaring, whooshing sound like a freight train rolling thru my head during this acute attack followed by an eerie silence before the permanent tinnitus set in. I went home and researched all of my symptoms and it came back with a 100% hit for Meniere's disease. A few doctors later, the official diagnosis was made for MD in September 2017. Some friendly advice is to pay close attention to your blocked ear and any other symptoms and keep a running list. This will help your Doctor to have a full picture of what's going on. God willing you will be ok and your condition will not progress into this wretched disease or anything else. Best wishes & God bless you.

    • Edited

      my menieres started exactly the same as yours! i also thought i had ear wax build up. ENT said no. Months later got my first vertigo attack. This disease is horrible. 😦

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.