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Endometrial cancer - what were your symptoms?

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Informed
Informed

Women with endometrial cancer have a variety of symptoms that differ between individual women, and, after diagnosis, many women wish they had acted earlier on something they thought was irrelevant.

If you have been diagnosed with endometrial cancer, please feel free to contribute your symptoms to this discussion, so that others reading this might get an earlier diagnosis.

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  • Baby21
    Baby21 Informed

    Posted

    I woke up my right side hurt and have brown discharge order. Doctor told me to go off my birth control pills. Been 1 day off now have brown discharge. My pelvic hurts .
  • Lizz52
    Lizz52 Informed

    Posted

    Hello Ladies, I am 52 and I went to my GYN for my annual. I had made a list for her, because I am close to Menopause and was experiencing a lot of symptoms. The one that stood out to my Dr. was my spotting and she wanted me to get a ultrasound of my uterus. The results was very thick lining of my endometrium 18.2mm. A couple days later, the nurse called to schedule a biopsy. My symptoms are swollen stomach, lost of appetite, golf size clotting, bleeding after a BM, constant pain and sometimes sharp pain in my uterus, and feeling tired. I am happy I am not alone in this scary and uncertain time of my life. Thanks for sharing
  • peggy52896
    peggy52896 Informed

    Edited

    Thanks for listing this forum! I'm 51 and about 4 years post menopausal. I've not had a period or any spotting in over 4 years. I have had problems with painful intercourse and vaginal drying and occasional watery discharge. A couple weeks ago, I had what seemed like a light period. I had to go buy panty liners, and over flowed them once or twice on the heaviest day. Around the same time, I had breast tenderness. I had even joked with my husband that it felt like I was pregnant, as that was always the first sign for me. Then came the bleeding. I called my GP, who most urgently insisted I go see a gyn. I had a pelvic ultrasound, and my uterine lining was 5.6mm, which he said was just barely abnormal. I'm getting scheduled for a D&C next week with biopsy. I felt like I've been over-reacting, that this was really just barely abnormal and I probably just had a little rose in estrogen...now I'm getting a little nervous. I've long thought my discharge smelled a little strange, but figured it was just what it's like to be menopausal...there really isn't much info out there!

    • joanne54604
      joanne54604 peggy52896

      Edited

      I am glad you are taking steps to have this check out.  Any bleeding after menopause should be investigated.  I was post menopause 18.5 years.  PAP test showed bacterial vaginosis but my doctor didn't feel it was serious.  Three months later I began to bleed, enough that I had to purchase several boxes of panty liners, then light pads.  A gyn took a biopsy sample while I was waiting for an ultrasound. The results came back about the same time as the ultrasound and it was a kick in the gut to hear that it was serious (the Big C).  they did a full hysterectomy and because it was early it appears that they got it all.  I am glad you are acting on this now. 

  • NancyR
    NancyR Informed

    Posted

    Hello and many thanks, Informed! I was just diagnosed with E.C. this past Monday. I do not believe that I have had symptoms but was prompted to go to the doctor when my belly swelled up and a gush of clear fluid soaked my pants. From that point, the fluid was constant clear with some pink until my D&C. Is this typical of early stage or should I brace myself? Many ladies symptoms mention bloody discharge but not clear. Your thoughts please.

    • joanne54604
      joanne54604 NancyR

      Posted

      I had a clear discharge for about 10 days before it became pink then went to red.  I did have the swollen belly but thought that maybe I was exercising poor eating habits or not enough physical exercise. 
    • joanne54604
      joanne54604 NancyR

      Posted

      The clear fluid was my first sign,  pinkish fluid , then spotting/light bleeding and bloating.  I also just didn't feel like myself and my eating habits changed - from moderate to heavy eating to hardly anything at all.

  • bernie1182
    bernie1182 Informed

    Posted

    Hello there!

    I'm so glad I found this forum. 

    After a d&c due to heavy bleeding, I was diagnosed with G1 Endo Ca. I opted to for a mirena treatment with the hope that we can try one more time to get pregnant. I'm almost to my three month mark for another check up. Since the placement of mirena I have been spotting and bleeding, worse was the first month. Also, I have every now and then a cramp or pinching pain in my lower abdomen.

    Some light headedness and exhaustion but nothing too severe.

    Curious if anyone opted for an intrauterine treatment and how it's going.  

    Thank you! 😚

    B-

  • priya456
    priya456 Informed

    Edited

    Symptoms of more advanced endometrial cancer include:

    1. Pain in the pelvic area.

    2. A pelvic lump.

    3. Weight loss.

    Symptoms of endometrial cancer can be mistaken for those of another condition, such as endometriosis.

  • stacy46225
    stacy46225 Informed

    Posted

    Hello Im 34 and I've been having issues for years! My lower back hurts, my stomach swells like I'm 7 months pregnant and I hurt in my overys and it feels as everything is gonna fall out. I have no sex drive and when I do have sex it hurts bad and I hurt for 3 or more days afterwards. I can not get any answers on what's wrong they just dope me up and send me home 😭

    • joanne54604
      joanne54604 stacy46225

      Posted

      If possible I would get an appointment with a gynecologist.  I think that an expert rather than a GP would be better able to give you an examination and diagnosis. 
    • InquiringMind
      InquiringMind stacy46225

      Posted

      HI, Stacey. 32 here. Have been experiencing all of the same symptoms as you, plus random bold pains in my pelvic area, deep in there towards my ovaries I imagine. Had some tests done, an ultrasound, had endometrial thickening and a huge cyst that had drained itself, had a biopsy that came back negative for anything malignant or otherwise. Th pathologist noted stromal and glandular breakdown, which is basically confused cells. I have a history of irregular periods and lately they seem to be disappearing, but as far as my OB can tell, nothing seriously concerning is wrong. So I’m going to go out on a limb and attribute most of my issues to my diet and my exercise habits. Which are very inconsistent. Best of luck to you!
  • InquiringMind
    InquiringMind Informed

    Edited

    Hello, everyone. I want to start by sending warm wishes and blessings to all here who have been through the ups and downs of cancer scares/diagnosis. I’m 32 years old. Family history of early menopause, endometriosis and cystic fibrosis on my mom’s side. Also, a history of breast cancer, cirrhosis, and thyroid disease on my dad’s side. 

    I have had yearly paps for the last 14 years. I was diagnosed with an aggressive strain of hpv16, about 2 years ago, which can lead to cerivical cancer. A biopsy confirmed that there was a “huge” cancerous lesion on my cervix and I was warned that it was growing rapidly. After the laparoscopic procedure to remove the lesion, I tested negative for hpv. 6 month check up: negative. 1 year check up: negative. Annual check up a year after that: my gyno orders a transvaginal ultrasound because of symptoms I’ve had - which aren’t typical. 

    My periods have gotten severely lighter over the past couple of years. Recently, they only last two days, and I only bleed (or drip) enough for thin panty liners, but I will pass clots when using the bathroom. I had noticed a foul odor one cycle that I’d never experienced before, or since, even though my std/sti panel came back clear - no infections, no hpv. The color of my menstrual blood has changed. Sometimes brownish to grey or “black.” Sometimes a very light hue of pink. Sometimes normal. It’s all over the place at the moment. 

    Transvaginal ultrasound showed my endometrial thickness at 13mm. Plus an empty, or recently drained cyst. Gyno ordered an endometrial biopsy. 3 month’s later I have that done and I am currently waiting on the results. I’ve been very fatigued lately. Even with naps, vitamins, drinking plenty of water, yoga. I’ve been emotional. Random bouts of nausea, especially at night. What feels like menstrual cramps in between periods. For a moment there I thought I was pregnant. I’m eager to have my results and am hoping for the best. According to my physician, I also have a “dying thyroid.” So I’m curious to see if that is connected at all to any of this. 

    I’ll be back with an update later this week. Peace to you all. 

    • InquiringMind
      InquiringMind

      Edited

      Thankfully my results came back negative for anything malignant or otherwise. It’s stressful not having answers, but until there is a definitive medical answer, I’m going to attribute my issues to my inconsistent diet and excercise habits. I’ve yet to have lab work done to check on my thyroid. I know this is a cancer thread, but even my OB was concerned and adamant about having a biopsy done to rule out anything cancerous. Therefore, I was also concerned. I hope my response can help put others at ease. Those with similar symptoms and no answers. So I’ll be back again with an update on my lab work when that time comes. Best wishes. 
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