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Endometriosis

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martha79229
martha79229

has anyone had an excision laparoscopic for Endo? I've been doing some research and it appears thats the best rout. However, not all OBGYN doctors are trained for it. 

which type of laparoscopic surgery has anyone had and what were there experiences? 

0 likes, 7 replies

7 Replies

  • froggy28
    froggy28 martha79229

    Posted

    Hi. My first op was laparoscopy to remove as much endo as possible which I had done by an endo specialist but the extent and the fact that bowel bladder womb and ovaries had all fused I was advised to have hysterectomy and oophorectomy in the long term. I will say it made a difference with the pain for quite a while.
    • martha79229
      martha79229 froggy28

      Posted

      thank you for responding....i dont think my OBGYN does Excision. I have an appointment with him on the 15th of this month. 

      did you have endo in your bowl and did they say if you would get a colostomy. I've been reading some get it.

    • froggy28
      froggy28 martha79229

      Posted

      No I was lucky it hadn't penetrated wall. It was one of reasons I had ovaries taken as less chance for any miniscule endo to start growing too quickly. I don't get any of the bowl problems around my period now which is great!
    • froggy28
      froggy28

      Posted

      That sounds like I still get periods which I obviously don't. I meant the probs I used to get aren't there now
    • martha79229
      martha79229 froggy28

      Posted

      i had a colonoscopy last year in June and everything was fine. Hopefully that means there was no penetration. 

      what stage were you? how long did you have he symptoms?

    • froggy28
      froggy28 martha79229

      Posted

      I've been in pain a long time 10 years plus but only went to drs when I lost a friend to cancer and it made me think I ought to get checked out to see what was wrong. I had scan which showed 20cm ovarian cyst but no endo. I went in the have cyst removed and it happened that my consultant surgeon was endo specialist. When I came round I was told I had frozen pelvis and extensive endo. They never did say what stage. I was advised that hysterectomy was best way forward. No endo showed on ultrasound ever!
  • aitarg35939
    aitarg35939 martha79229

    Posted

    Hi Martha

    I'm very sorry to have to tell you that a colonoscopy won't reliably show whether there's endo because endo is usually on the outside of the intestine. In my case tho I'd had everything removed at 27,, when I was 54 I had to have a section of colon removed. We all thought I had diverticulitis after 2 colonoscopies and either a CT or MRI, but pathologists said I only had endometriosis again.

    I can't speak to any modern treatments because virtually none were available in my time.

    Wishing you best of luck and good, pain-free health

    Aitarg

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