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Endometriosis after a total Hysterectomy

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nicki55473
nicki55473

Hi. I'm looking for some advice as don't know who to speak to. I was admitted into hospital last Thursday for what was possible appendicitis. Anyway the following day I was referred to the Gynae team.. confused as to why. I was told that on 2016 they found a 4mm growth which is now 10mm following a CT Scan. I am in so much pain. And to be honest I am so upset because I never wanted to go through this pain ever again, after years of surgery, pain and medication I was relieved when it was all taken away.

Anyway I went onto HRT a combination tablet and had no trouble. I went to my GP last year and asked for a repeat prescription to be told for 7 years i was taking the wrong one and only needed a 1 hormone HRT. So i have been taking it ever since and to be honest haven't felt myself for a long time.

I am now to go back on a Combined HRT patch.

Does anyone know if this will help the pain and reduce the endometriosis getting worse.

Sorry for going on, but I am gutted that after 14years I'm back to square one. I'm 43 and lucky to have 2 beautiful grown up children..

The patch I have been prescribed Evorel Sequi Patches.. has anyone else used these.

0 likes, 6 replies

6 Replies

  • aitarg35939
    aitarg35939 nicki55473

    Posted

    Hi Nicki

    All I can really do is offer empathy. I had a total hysterectomy at 27, went on conjugated estrogen (premarin) and at 54, endo was back & I had a bowel resection. I had already cut my HRT almost to nothing so I went off it completely.

    When I woke up from that surgery, not then knowing that endo was what had caused the problem, my first words in my room were that if I needed another abdominal surgery, my significant other & an old friend who was there should take me out & put me out of my misery because I wouldn' t have another abdominal surgery. (That was abdominal surg #5, not all for endo.)

    So I ignore abdominal issues. Right now something is going on with my bladder but I'm trying re-training. Haven't seen a gyn in 30 years. I am sure that any gyn & any gastro would want to cut me open. Nope, at least not now. I'll live with my adhesions as long as i can.

  • sagarius
    sagarius nicki55473

    Posted

    Sorry for the confusion  but what stage of endo are you in? Are the patches stopping your period? When did you last have a period? Whats the consistency? I really hope you consider detoxing love
    • aitarg35939
      aitarg35939 sagarius

      Posted

      Confusion???? You think we're going to buy that??? How can you possibly be a woman with endo and not know what a hysterectomy, much less a total hysterectomy means, in terms of periods and stages?

      Or could it be that you are only on this site to sell a detox program, which is what I've wondered about you all along.

      FYI, hysterectomy means removal of uterus & total hysterectomy means removal of uterus, tubes, cervix. Tell us , please, which part it is that sheds its lining in 28-day (roughly) cycles and without which there will be no bleeding?

    • aitarg35939
      aitarg35939

      Posted

      Sorry, let me clarify to Sagarius: What's the body part without which there will be no vaginal bleeding?

    • sagarius
      sagarius aitarg35939

      Posted

      You read all that from my statement? Please focus on her and not me! I’m

      Not confused about anything. 

    • aitarg35939
      aitarg35939 sagarius

      Posted

      Sorry, but she said she had a total hysterectomy and you seem confused about what that means. The uterus is what slough its lining and bleeds in monthly cycles. A hysterectomy means removal of the uterus. How is she supposed to be bleeding in monthly cycles without a uterus?

      You know zero about women's menstrual cycles & zero about endo, clearly. Go over to the alternative forum to sell your detox junk.

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