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endometriosis after hysterectomy-please help

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danpicshe
danpicshe

Dear Friends,

I had a hysterectomy on Sept. 1st. due to a fibroid. The pathology reported endometriosis. I have had severe back and pelvic pain every since. My belly is so distended that I look 9 months pregnant. My surgeon and bladder specialist prescribed me with Lupron. I received the shot about a month ago with no relief. I recently went for a cystoscopy which was normal and I am going for a CT scan on Monday. I wish my surgeon had taken out my ovaries. At this point, I feel pretty miserable, because I can't sit or stand without constant pain. I feel that I am in need of a second opinion. I live close to Philadelphia. Can anyone provide some advice? I would be most grateful. Thanks for listening.

Best,

Danielle

0 likes, 5 replies

5 Replies

  • laurianne09876
    laurianne09876 danpicshe

    Posted

    I have lots of pain and my belly is like your I go at the hospital last of gen they give me pain killers. Two days ago the pain was lots I cans sit down and walk. I go hospital and give me pain killers and still in pain and if I clean or try to do something I can't sad

  • danpicshe
    danpicshe

    Posted

    Thank you for your reply. I've just been taking Motrin. I feel like the doctors think I'm crazy. The urologist said that it could be muscular or skeletal. And, I know it's not. I hope the CT scan shows something. I don't know if I can wait six months for this Lupron to kick in. UHHH!

    Thanks again!

    Danielle

    • aitarg35939
      aitarg35939 danpicshe

      Posted

      You need new docs because someone who knows about endo understands what you're experiencing. I know there are some endo specialists in NYC but I don't know their names. If you FB, go to the site on there for endo in the US & ask the question in that community. I vastly prefer patient & these great folks in the UK for support but that stateside community will have more local doc names.

      It can take a while to see an endo specialist. Think about starting a health journal now & going forward. After you get it started summarize what happened before -- surgery, docs, Lupron, etc.

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