1. Community
  2. Women's health
  3. Endometriosis

Endometriosis and the mirena coil

Posted , 3 users are following.

amy57522
amy57522

Has anyone with endometriosis got the coil? I have been told by a gynaecologist that it helps with the symptoms of endometriosis but I don't know much about the pros and cons. Does it actually help ease the symptoms or does it make things worse? There is a possibility I have endo they want to test me with the coil before doing a laproscopy to confirm endometriosis first to see if it eases of all these heavy cramping periods and pains but does the coil actually help? Or are they just saving themselves money by not doing the laproscopy now and telling me to wait 6 months to see if the coil works

0 likes, 5 replies

5 Replies

  • eldk75
    eldk75 amy57522

    Posted

    Hi

    Sorry to hear that you are having such problems. I was diagnosed with endometriosis via a laproscopy 2years ago. The dr highly recommended the mirena coil both before the operation and after but i resisted until last summer. I eventually had it fitted in July and since then all my endometriosis has gone.

    I also suffer with cysts, and had to have surgery to remove a complex cyst in January. The consultant discovered that all my endometriosis had cleared up with no sign of it.

    I have tried so many different types of treatment, the pill, mini pill, the implant. I have to say the coil has definitely been the best and most effective treatment. I rarely have a period and if i do its only spotting. All my symptoms have disappeared. Its always hard to make the decision but I would say give it a chance. Best choice i made.

    Good luck

    • amy57522
      amy57522 eldk75

      Posted

      Hey thanks for the reply. I have a consultation with my GP today who specialised in gynae and we spoke about the pros and cons and she said that if I react they can always remove it. I tend to react with a lot of medications because of the neurological medications I take they react with a lot of other things so we are going to trial it and review me every week to make sure my body is okay with it. So nervous and scared at the same time. I've been told about the side effects after having it fitted like the cramps and stuff. Hopefully it's not as bad as what they have been like but I'm ready to try it.. roll on the 11th may. Oh no one has mentioned this to me but for the mirena coil to be fitted aren't you meant to be on your period like the first couple of days for them to do it or do they just insert it at any time?

  • sara89916
    sara89916 amy57522

    Posted

    Hi Amy,

    we know you have heavy bleeding.

    Is it EXTREMELY painful?

    do you have pain while having sex?

    If the answer of these 2 questions is yes... then you have endometriosis... else it might only be the beginning and all the symptoms are not present yet or it might not be it all together... you should then try this...

    gluten, lactose and sugar free for 2 to 3 months while waiting for the doctor... if you sex life and bleeing pains improve then no point for you to have yourself hole on your body then it is endometriosis.

    stick on that diet and after 2 months you will need natural vitamins as well. pm me at that time and I will let you know which one I take...

    just for reference: I have endometriosis for more than 20years

     

    • amy57522
      amy57522 sara89916

      Posted

      Hi, I have gastro problems so I am only eat a certain diet as I have crohns so my gastroenterologist and dietrician have me on a meal plan. My periods are that painful on 5 occasions they have thought I have had an appendicitis and admitted me into hospital just a few days because a period starts. Each time it's confirmed it's not my appendix. Yes sex is very painful and I tend to bleed afterwards so right now I've decided against it. Put it this way I'm becoming a nun if it carries on the way it has been. The pelvic pain is horrendous. My bowels are playing havoc with me which isn't helping. I currently have B12 injections and other vitamins from my doctors to also help my immune system, bowels, tolerances and everything else. It's only been the last few months things have been getting worse for me. I just thought oh it's just a cramps period until it got worse, bled in between periods and still do when it's so bad I take tramadol as prescribed and it still doesn't help the pain for me. I can't move out of bed. Hot compressions don't help and my tummy gets really sensitive to touch. Mefenamic acid hasn't helped. I'm going to try to the coil see if that helps.

    • sara89916
      sara89916 amy57522

      Posted

      I feel so bad to read you because it is just the copy of my memory about 14 years ago, when I was shooting myself with 20 pain killers at once...

      I used decapeptyl about 12 years ago and if I had to decide that again I wouldn't have taking it. The reason is simple... I think the endometriosis got worse quicker while I did not have my period and I think the blood that was not coming out was staying in and glue my bowel, uterus, ovaries... together.

      Anyway... in my medical history I had 4 surgeries to remove cysts and later I started to develop fibroid. 

      Believe it or not the every single time I went to the doctor (different one including specialist of endo) they could not believe when I said I had next to no pain... according to the history of how severe my endo was.

      curiously none of them ever asked me what I did for that.

      Well I cannot say much about crohns since I am not a doctor. But I will not be surprised that part of your gastro problem may be related to endometriosis. I had a bit of gastro problem too... In fact my bowel, bladder, uterus, ovaries, tubes... are attached together due to the disease. I need a major operation to free all of them. The consequence is that I was going to the toilet twice a week when I was lucky and I was (I am still) always hungry. Today I go to toilet every day.

      Except being always hungry.. all other symptoms almost all disappear... including the fibroid (I used to feel it while touching my tommy; I cannot feel it anymore)

      Today I almost have a normal life including sex life... more or less endometriosis free...

      - Diet (gluten, lactose, sugar free, no red meat)

      - extra natural vitamins

      - first day of my period I take Naprosen (only 1)

      this changed my life and I wish it changes yours...

      Unfortunately today endometriosis remains a disease without effective treatments. even doctor do not really have a clue of what can work and what doesn't. many pain killers in the market are not even recommanded for endo... (if you are taking paracetamol as pain killer... please put it aside, it is hurting you more)

      Amy... give yourself 3months or so with the gluten, lactose and sugar free diet and see how it works for you.

      ou have nothing to loose trying.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.