Endometriosis/laproscopy

Hi Betty, I'm sorry this post is going to be long.  I'm so sorry you are having these problems.  Let me start off by saying your doctor doesn't seem to be a very good one.  Especially seeing as she discharged you from care without speaking to you.  For 3 years I told my doctor I thought I had endometriosis.  Her response was "why do you think you have that?!" In a very rude tone.  Finally, she did a laproscopy and found that I did have it.  She removed what she could, but could not remove it on my bladder and colon as it is too dangerous to remove in those areas.  When the pain continued, she only suggested to me one treatment.  Lupron shot.  I refused as the lupron shot had too many side effects and I am very prone to depression with birth control pills in the past and Lupron users have experienced this side effect a lot.  She made me feel like I was an idiot and I finally got an appt with a specialist for endometriosis.  The specialist has treated me now for 3 years, on my first visit he said "endometriosis is a horrible disease, and only you know what pain you are in.  So I'm going to give you the options for treatment, and you tell me which one you would like to go with, and if one doesn't work, we will move to the next one."  He gave me options of progesterone, doing lap again so he could see exactly what's going on, estrogen therapy.  And he said he would not suggest lupron because it's a short term fix for a long term problem.  I chose to start with the progesterone.  It helped for about a year, and then he had to switch up medicine.  He said with endometriosis sometimes the disease will do that.  A medicine can work great and then stop working.  Anyhow, now I'm back on the progesterone (letrezole is what I take) and I still have pain, but it's more manageable than it was.  From my story, I just wanted you to know that I also had a doctor that didn't know what she was doing.  And a specialist is really where I suggest you try and go.  Endo is such a horrible disease and you may have it in places your doctor didn't look in the lap.  I wish all doctors were as sensitive and knowledgeable about endo because constant pelvic pain is horrific and really beats you down.  Maybe talk to another doctor and ask to see a Pelvic Floor specialist.  Most of them are endo specialists as well.  I hope everything gets better and you find the answers you are looking for.  You are in my thoughts! 

Betty, did you post before under a different name?  I ask because I hate to repeat myself.

If this hasn't happened already, you need to be checked for both Crohn's disease & ulcerative colitis.  The pain & some symptoms are identical.

Find out if there was a visual record made of the lap & hysteroscopy.  If yes, get a copy of it before it is destroyed, to share with endo & gastro specialists.

Hope they figure this out soon.