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Endoscopic Ultrasound Results?

Posted , 6 users are following.

Dystopia13
Dystopia13

Hi all! 

I’ve been struggling with abdominal pain since I was 15, and I’m now 22 and never received any answers.

Diagnosed at 19 with chronic pancreatitis (despite having no real tests done other than bloods). Was recently admitted into hospital for a flare up, and sent for an Endoscopic Ultrasound (due to the CP diagnosis with no imagery) but the results weren’t really clear to me so I’m just wondering if anyone can give me a bit of insight into what this means. They’re sending me back to the specialist in 4 weeks for “faecal calprotectin and elastase” but i don’t know what this means. 

I feel like I just want answers now after suffering for so long at such a young age... If anyone has had the same results and got a diagnosis, please let me know. There’s nothing worse than telling friends, work or university tutors that you need to stay in bed for a week because you’re in pain but can’t give them a real reason as to why. 

Report was as follows: 

- “procedure completed successfully to D2”

- “CBD non dilated”

- “duct tapers smoothly into the ampulla” 

- “4mm polyp in the GB, no stones”

- “MPD non dilated but ectatic and has hyperechoic thickened walls”

- “pancreas’s parenchyma is not completely normal. there is stranding and some lobularity but no atrophy/cysts or calcifications” 

- “impression indeterminate for chronic pancreatitis” 

0 likes, 7 replies

7 Replies

  • biliarydyskines
    biliarydyskines Dystopia13

    Posted

    Abdominal pain on left or right or the whole abdominal?

    Also it seems you have polyp in gallbladder, did they no ask to remove gallbladder?

    • Dystopia13
      Dystopia13 biliarydyskines

      Posted

      Pretty much the whole abdomen, but mainly upper central radiating to bottom of my back.

      They never commented on my results, just handed me a piece of paper with loads of words I don’t understand and let me leave. I tried my best to google but there’s not much in terms of medical sentences :’) 

  • jamie_1004
    jamie_1004 Dystopia13

    Posted

    Have they done anything else to check your gallbladder? I’m 16 and have gallstones but they tend to give me upper abdominal pain (normally right in the center, between my ribcage), neck/shoulder pain, and back pain. Maybe doing more tests on your GB would give you some answers? I’ve been struggling since December of last year and I still don’t have all the answers I want.. I hope we both get some answers. 
  • Tori88
    Tori88 Dystopia13

    Posted

    I would call the doctors office who did the procedure, and ask for a detailed explanation of your results. It is really dissapointing noone went over it with you. For some reason its harder for me to speak up for myself as a patient, but something I always like to do is ask them to print out educational material on my diagnosis and tests, it really helps! It sounds like you are a really strong person to go through all of this, I understand your frustration sad

    I read that faecal calprotectin and elastase, is a test used to rule out different causes of inflammatory GI symptoms, i.e. a diagnosis of crohn's disease, versus irritable bowl syndrome. It sounds like maybe they are planning to do this test in order to find other causes of your abdominal pain?

    Also, personally I would ask them more about the, "4mm polyp in the GB," for example, if it was removed and if there are any biopsy results.

  • pippa58442
    pippa58442 Dystopia13

    Posted

    An elastase test looks to see if your pancreas is producing enough of the elastase enzyme which is produced by exocrine tissue in your pancreas.  A fecal calprotectin test, looks for signs of inflammation in your bowel which could indicate inflammatory bowel disease such as Crohns or ulcerative colitis.

    Ask your specialist to explain your report to you in plain English because the report is in medical speak and unless you are a doctor, you won’t understand it.  

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