Energy Lifts (B5 and Ribose)

Yes, I probably am plagued with FM but OA is my worst issue...A very well known doc in the UK says to add Ribose to coffee which I am doing right now in my morning cup....   FM pain and OA pain bring one down so whatever can help bring us up, I'm onto....

.Do a search on Ribose, so you get the whole picture....I first heard about it when I attended a FM/CFS support group many years ago.....  My friend who deals with ME has been using Ribose for 7.5 yrs and me about 7 yrs off and on....using it more recently and all since hip replacement trauma in 2010......So, this is my saga drama stuff.....

Gosh Joy, that's not easy to live with.  I have a friend who has suffered FM for a very long time and less and less does she answer the phone, because she does not even have the energy to pick up the phone.  I'll pass this on.

hanny, I've never been that bad, but I do take a lot of supps and swear by grape seed extract which I believe has been a salvation for me on general overall  health and the FM "stuff"......19 yrs on this powerful antioxidant....it's never too late to get on it and with it.   Joy

Grape seed extract, I should keep that one in mind.  Makes sense for a lot of things, doesn't it.

YES, this powerful antioxidant addresses 69 some health issues....I wouldn't be without it, I'm basically very healthy and grape seed ex doesn't change body structure from back mess and hip mess surgery.....and lifelong OA....but it makes it all more manageable.   Joy

My good friend who deals with ME and I are big supp users and we sometimes complain about what we take but I don't think the alternative works...I don't even count my supps/vits anymore, it's how I feel that counts.....I'm waiting for my B5 to arrive any day as I want to get back on it.....and I KNOW when I take some Ribose, I can feel some boost....

Over the 25 yrs of taking supps, I have eliminated ones that didn't seem to help me.....so you eliminate and try new ones....this works in my life....and outside of OA and FM pains and a bunch of nerve damage from hip replacement,  I'm pretty healthy......Joy

did you decide to try reducing calcium a touch?

Yes and No, some days I take 250mg and some days 500mg but no more....

very wise xx

Love your name:  Hope4cure.

Indeed, I too take a lot of supplements, but that together with the knowledge and guidance of my nature path/doctor/specialist.  I'm able to discuss and ask questions.  And that way, together, we've come far already.  

Working towards a more manageable LS.  

I take supplements too. My doctor has advised me on many . I have taken many for years not sure many help.

especially PSA , OA & other medical issues. Diet is important.

Surgery is recommended for my hands with Dupuytrens contracture this is on auto immune disease. I wish supplements would help. It runs in the family as other forms of arthritis I have.

I hope u can get UR LS at least in remission. As many do go into remission randomly.  It's a difficult struggle. 

Hope UR doing better soon. U sound determined and positive .

 

More and more I'm starting to understand that diet - in this case alkaline diet - is a good route to follow.  Was living/eating already very much in that direction, small adjustments to be made yet.

And yes, I'm determined.  Hard work perhaps pays off.  

All the best I wish you.  

I eat a anti inflamatory diet. For auto immune diseases. Sugar and flour wheat, foods that cause imflamation. See info on this site. This is my experience. Also staying active knowing my limitations, be mindful of my movements. Finding ways to stay busy with my  fav thigs to do that helps . Even with two curled up hands that r frozen. All these activities I find bring the natural endorphins out in UR body to fight inflammation .

i never eat prepared foods or boxed. All prepared natural veggies and only grass feed animals and a lot of fresh fish. 

Many have raved about eating alkaline diets. Alkaline is a PH above 7.0 if u have testing stripes then it's easer to keep track of how alkaline UR body is at any given moment. I've watch drs speaking in videos on you tube. Read books. There are great expectations for alkaline diets.There is a lot of info on it. It just did not help me .

Struggling and studying what is best for u and what works for u is very helpful. It does not work for me. There is even alkaline water u can purchase as well as alkaline foods & supplements, additives to add to water.

Good luck on UR food intake with alkaline foods I hope it helps you. 

Always be be curous and search for what works for you!

LIFE IS A GIFT!

 

I agree - Life is a gift.

I accidently landed on the alkaline/accidity end of things.  Was already on gluten free, suger free, no caffeine, no alcohol, no soya, cautious dairy diet.  Will have to stick to all that due to other health issues. Then compared it with the list of alkaline foods.  I thought that I was already pretty close to the alkaline diet.  And it seems to make a difference.  This together with my baking soda rinse and coconut oil 'regime'.  I'm clearly helped by it all.  I hope that my effort will result in a better way of living with LS.

I wonder how much of a difference the alkaline diet makes with the anti-flamatory diet.  Would you be able to explain?

 

yes hanny is determined and positive I can confirm this Joy...its lovely to have you here with us Hope. I've started a little tribute to Joy...should you wish to contribute...its over in the chat room. would love to have your thoughts x

yes i applaud that too ...that Life is a gift...thank you both so much for this ever appreciated reminder.

Hanny I've been following your progress with the alkalinity thing and the use of bicarb..I'm sure its helpful ..but do you know what I think may really be making the difference? Its since you said that you consulted further with your Naturopath and reviewed your supplements.

I was wondering...did he add some anti-oxidants...and other things?

It seemed to me very much that the improvement you experienced might well have arisen from those adjustments....!        and that perhaps this is due to internal changes rather than the more superficial applications which you perceived as making the difference. Do you think this is possible? Just a thought as your progress has been quite profound. I really think that something has shifted for you and that the anti-oxidants if that is what you have added might be making the difference. Do you think this is possible?

Marey I'm working on outside and inside.  Once a week I use the test strips to measure the pH level.  It has been amazing this far, but I will need further interpretation from my doctor to be able to sound more convincing.  

The improvements started clearly with the external. (no doubt) (and is still very important)  The external then became a starting point and I understood 'the why' better after consulting with my family physician as well as my naturepath.  They both pointed in the same direction. But both had not made the connection with LS at that point.  

So it became 'all hands on deck' so to speak.  I was already taking a lot of so called supplements due to other health issues.  And already followed a strict diet, that proved to be fairly alkaline.  (small adjustments) Not much needed to be added and substracted, but may proof to be important.   I will make a new appointment next week, to hear what they have to say about the result(s) this far.  Also will visit the specialist who did the dilation procedure.   

Amazing how close I was all the time, but if you're not understanding things, then you won't see why you should pursue further.  And also, in a short period of time there was much to learn about this 'new kid on the block', nasty 'inconvenience' that now finally got a name - LS.  For which I learned "there was no cure".  

In spite of various interpretations regarding this disease, I am very hopeful at this moment in time that I will find a way to make it more liveable.  And as far as I can see today -  I'm coming all the time a little closer.  (You know how bad a condition I was in only a short couple of months ago.) (yes, it really looked like Barbie with only a pin hole left to pass urine) (you would never know that there had ever been anything else)  (Not to mention the psychological drama a person goes through.) 

However, one needs to be careful to say "I found a cure".  That's absolutely not the case.  Also, we know that there are various kinds of LS.  What I'm doing works for me, but maybe not for someone else.  And what will happen when I stop being so diligent with the baking soda rinse, bath and the coconut oil?  There is still a lot of unknown.  

However, so far so good.  Marching on and all the time learning more.

Thanks for your support.  Wishing you WELL.  

  

I keep a fresh lemon going all the time, squeze it in everything I eat and drink just about.....once the lemon goes into the body, it alkalizes our body.

I may have mentioned this before but if not....check out sites online re:

Alkaline acidic food charts 

When one eats acidic foods then it's a given the body will become more acidic and then work to counteract that issue.   J

Thank you Joy!  I had the lemon in my food, and in my tea.  Thought it helped digestion.  Alkaline as well. Bonus! 

WOW Hanny...

that is so great! its so brilliant that things have moved on so much and so quickly for you!!

I couldn't agree more that its all about understanding getting it and feeling the conviction.

well you really think the bicarb did it?

you were doing that BEFORE adding more supplements? or do you think the supplements were kicking in? ARE YOU TAKING ANTI-OXIDANTS?

Marey, I find it hard to say that one thing or another "did it".  Sooner I would say that it may as well be a combination of factors, and who knows, luck. 

I think that I have left nothing 'un-tried'.  Following a mostly alkaline diet - fruits and vegies (anti-oxidants), organic mostly.  (own garden and orchard)  Much of this diet was already in place due to other health issues, but needed fine tuning.  (Left out sugar, caffeine, gluten, soya, alcohol, most dairy for a long time already)

Biggest 'kicker' I think has been the bicarb.  Both outside and inside.  Plus coconut oil.  The use of this combo showed a change in relatively short time.