ENT says not BPPV so now what ^..^

Posted , 5 users are following.

2 weeks ago I turned over in bed to have the most wicked vertigo attack every time moved my head left or right. It floored me for day I was exhausted, and then very dizzy for the next few days. Then I had another much smaller attack same thing early morning in bed rolling over. I'm still feeling out of balance and fatigued but it has improved.

Yesterday I went to ENT as was going anyway prior to this for tinnitus check, which is mild and the only hearing loss is at high pitch 16000, dec. So not related to the vertigo he said.

He performed all sorts of manouvers and tests, my balance was good , hall pike test negative for nystagmus so he said not BPPV.

3 days prior to the 1st episode I had an osteo crack my neck , spent next few days in pain then wham vertigo hit. He can't say if it's related or not. I'm still definitely wobbly and a tad worried about a wait and see approach (what are chances of nasty head things) whilst no vertigo when I tilt to the right I do feel more out of balance and when walking I want to veer left,

I'm confused about what to do now, any advice ?

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13 Replies

  • Posted

    Hi there sound like vestibular neuritis I suggest seeing a physico therapist inner ear problems are really hard to diagnose excercises to retrain the brain for balance really helped me everyday once Iin morning then at night in theIis a long process but they do help I hope this helps good luck
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    • Posted

      Thanks so much Deb I've got myself quite worried about all sorts of other conditions, dam Google. Wish I just roll with it. Did you take long to come right? Is it normal to get some facial sensations too? Mine come and go, could be from my neck maybe?
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  • Posted

    I have been diagnosed with vestibular neuritis. During the onset I was floored for several days as lifting my head off the pillow would increase the dizziness. To name a few symptoms, I had fullness of ear, tinnitus, poor cognition, fatigue, nystagmus and, like you, mild-moderate hearing loss of the high pitch. It has destroyed the balance in my left ear so am in the process of retraining the brain (4 months). I had various tests, MRI to eliminate any brain issues but I think the main test for VN is caloric testing as this tests your vestibular function. Perhaps your ENT specialist could organise this test?
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    • Posted

      How does something like this even start. Honestly out of the blue, my tinnitus has settled back down and my neck not so sore today, i think I'll go ahead with the Mri to rule out sinister things. Just odd how it all started after the nevk crunch sad
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    • Posted

      Forgot to mention also that on one side of my ear feels blocked always and I always have a swollen lymph node just under it, randomly for a few days I get shooting pain in ear, Drs can't see anything, then it's gone again . Perhaps inflammation coming and going has now caused issue.
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    • Posted

      Yep it's difficult to know what to eliminate. Was it the neck crunch or a virus/VN?  My attack hit me out of the blue. I felt fine, had just been out with friends, then started feeling dizzy and vomiting. Spent the night on the bathroom floor as I just wanted to be as flat as possible and sleep but needed to vomit ever 30 mins or so. The ambulance took me to hospital the following morning. The consultant can't say exactly what happened to me, could have been a virus?

      For peace of mind, It's a good idea to have the MRI.

      My ear didn't feel blocked as such, it was more like pressure/fullness of ear.

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    • Posted

      Yes you're right maybe just coincidental with the osteo treatment. It did seem positional vertigo , however i believe that the absolute fatigue etc doesn't come with Bppv .

      Also I had no nystagmus .

      Maybe a mild case of VN?

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    • Posted

      I was thinking you may have a mild case of VN but don't feel qualified to say. Can only really let you know what happened to me. So glad your balance wasn't hugely affected, my balance issue leaves me feeling quite disabled.
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    • Posted

      I'm so sorry to hear that's happened to you, makes mine small by comparison . Hopefully it will get less as time goes by, thank you so much for sharing your experience , it really helps
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  • Posted

    I would like to share my symptoms... So it happened 3 years ago my 1st dizziness and so on until now, I always feel dizzy specially when i walk i feel like the ground is moving and it became worst if you are walking for 10-20minutes and then u stop walking its like u will fall while standing , i also have a very hardtime when eating because everytime i eat i feel lightheaded and feel like ill fall off my chair while eating,i have tried serc,stugeron,betavert but nothing seems to help. I have tried all kind of test VN test,blood test hearing test eye test but not mri cuz the doctor told me i dont need it since my VN test is normal and all test r normal, so like 1 year ago i became okay! Like im back again to myself then 3weeks ago while in the market i felt my worst dizzy attacks! Where i almost pass out! I loss control to my legs and mind i felt like i was gonna pass out! And i was rushed to ER and the doctor ruled out its vertigo cuz when i look down then suddenly look up i bexame dizzy and that feeling was very scary! So my dizziness is back again and imbalance. Everytime i walk its like im in elevator. I still look for a cure about this kind of illness...
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    • Posted

      Gosh that's sounds an awful ordeal for you , I'm so sorry to hear it's come back. Can't believe the won't give you an Mri, it hardly seems fair and especially since you ended up in hospital. I've not had vertigo since last weekend and I can get around walking without falling over, but I get tired easily then get what I call "speed wobbles" I've had them before but put it down to iron anaemia . I don' like the facial tingling and sensations that come and go. I do hope your latest episode disappears for you very soon.
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  • Posted

    Hi Pebbles, 

    It sounds like labrynthitis, which is what I have been suffering from for the last ten weeks. I am improving, but I went to my physio on Thursday last week who did different head manouvers and each time she did the same sequence I improved how I felt each time. The movement I felt the worst, was sitting up and looking down at the floor; it was horrible, I felt really woosey and sick when she did it. 

    I have been on anti dizzy tablets which do help and ease the diziness. I have been back at work, but I find When I lean to the right side I tend to lose my balance slightly. 

    I would look up labrynthitis, and compare your symptoms you are experiencing. Vertigo Diziness is horrible, I am still not cured but better than I was, and I am managing to do more, so the more info you have so that you can get better fast the better. 

    Let me know how you get on and if my info has been any use to you. 

    Good luck 

    xx

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