Environmental Triggers for Hormone Imbalance and Periodic Paralysis
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For a little over two years I've struggled with a cocktail of symptoms ranging from neurological, to IBS, to adrenal/hormonal. It started shortly after moving to Washington at the beginning of 2016, got better shortly after leaving Washington last August, then got severely worse as allergy season hit Arizona March-June, 2018.
Age: 28
Sex: Male
My testosterone:
July 2017: Slight decline to 325.
December 2018: Increase to 380.
May 2018: Steep decline to 240.
August 2018: Increase to 295.
LH is within normal range, FSH is at .9/low.
I have inflamed sinuses, along with either a polyp or cyst developing in both of my lower sinus, and have reduced over all symptoms when taking anti-histamines (ex/ Benadryl gives me energy and more focus). Yet I have no antibodies for allergies, even on known substances that I have reacted to as recently as 2014 (penicillin/anything related causes bloating, blood in urine and stool, full body pain, and full body rash; my dentist at the time prescribed such an antibiotic by mistake after removing my wisdom teeth).
I have on and off strong bouts of inflammation and will wake up covered in hair that I've shed overnight.
I deal with severe bloating and go back forth between constipation and loose/watery stools.
I struggle regularly with fatigue, muscle weakness, brain fog, short term memory issues, and neurological pain (I feel like I'm holding a live wire across the entirety of my body).
Occasionally, I lose more than just range of movement, and go into full bouts of paralysis (my fiance catching an episode on tape/witnessing a full episode for the first time):
I sometimes lose the ability to speak/form and understand words, and I urinate far too frequently (sometimes I'm unable to leave the bathroom for up to an hour due to on and off urination).
My Endo took me off of medication for the last month and a half to test me at my baseline, and my metabolism/interest in food dropped drastically (I have gone down to one meal a day, and yet have gained 10lbs, since going off my allergy and testosterone meds).
All of this has me very confused, and very scared, and I really don't know what to do medically, much less financially--as I've been unable to work. I went from being a normal, OK slightly workaholic, individual who biked 32 miles a day regularly, on top of working out, to a shell of who I once was. I don't do drugs, don't smoke, and drink only once in a blue moon--and I've changed diets more times than I can count on one hand based on doctor recommendations over the last two years.
Any and all help would be very much so appreciated.
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0 likes, 1 reply
H4z dkilby
Posted
Hi,
I'm really sorry to read about the difficulty you're going through.
What stood out from your post is the diets you said you've tried based on doctor recommendations. From experience doctors are rarely qualified to provide dietary or nutrition advice. Here in the UK, at least historically, the doctors and general medical practitioners receive little to no training on nutrition. I also understand that it is similar in the US, with less than 1% of a medical doctor's education being dedicated to diet and nutrition. I thought I'd highlight this in case you thought it would be helpful and were able to see a qualified nutritionist, instead?
Additionally, and in the off chance you haven't yet considered it. I've come to understand a whole food plant-based diet to be an optimal diet for health, and for protecting your body from diseases and mortality. I have a history of physical and mental health problems and all the pains and symptoms I used to have such as breathing difficulties, incontinence, body pains, and when things were at their worst: sleeplessness, overeating and recurring thoughts of suicide (which lasted for over a decade), all feel like they're gradually become nonexistent over the last four years, and particularly in the last year, where my eating habits feel like they've finally got to a good place. To briefly go into the diet side of things, or at least how I have come to understand it and have come to apply it: it's comprised of plant foods including fruits, vegetables, leafy greens, whole spices, beans and grains, and perhaps smaller amounts of nuts and seeds. With the colour in these foods being a good indicator of their nutritional value. So just as examples, brown rice over white, red or sweet potatoes over white, the black colour of the skin of an aubergine and the dark green of a cucumber indicating high levels of vitamins and minerals. Additionally, plant foods are full of fibre that help your digestive system operate well, passing through what it doesn't need. I think the best bit about it for me has been able to eat and not really worry about the amount I eat/overeat. And I've never felt more satiated. I also find that it's not hard or expensive to put together delicious meals. I go for convenience where possible with bags of pre-chopped fruit and veg, easy open tins of things like kidney beans and chickpeas, and easy to add spices to add to a variety of meals and salads.
I have also found it really helpful to fill-up on evidence based nutrition studies from nutritionfacts.org and other good sources. I find good in-depth knowledge on these things really motivate me to both try and keep to beneficial food and activity regimes such as getting enough sleep and adequate exercise. Regarding sleep, which is something I'm focusing on improving at the moment. It may be worth checking out the book 'Why We Sleep'. It's been really helpful to me, again in motivating me to sleep more (due to the evidence based study). The book also highlights things like the sleep epidemic the world is in, the damage that's done from lack of sleep, myths like sleep debt - there's no such thing apparently - losing sleep permanently damages us both mentally and physically.
The only other thing that comes to mind, and I might just finish by recommending a documentary that I thought was very well made and highlighted things well on the whole food plant-based side of things. It's called 'Food Choices' and should be available on Netflix and other good streaming services.
I hope I've been helpful, and I hope you find a way of improving things.