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Epstein -Barr Virus

Posted , 11 users are following.

joey_12298
joey_12298

I came across a site,  GOOP - The Root of Medical Mysteries. It was so informative, & interesting about what they suspect. Apparently, it is the Epstein - Barr Virus that is causing problems for mostly women that closely resembles our PMR problems & of course, descriptions of other diseases like Fibro-Myalgia. On the site they suggest a diet that I am going to try for 2 weeks.  Has anyone read this information or has comments on this finding? Or even tried it?

Thank you.

0 likes, 14 replies

14 Replies

  • AlVB
    AlVB joey_12298

    Posted

    Hi Joey,

    I would triple check anything that GOOP offers. It's a very faddy site with a 'science lite' approach. A quick search didn't find much evidence out there.

    Having said that, an anti immune diet is always worth investigating.  Good luck! smile

  • Michdonn
    Michdonn joey_12298

    Posted

    Hi Joey, I do not know that site. The EBV has been ID to cause about 64 different AI problems. The last I read further studies or still going on at the University of Colorado as to cause or causes of PMR. As for anti-inflammatory diet, my wife and I are both eating that type of diet. I know it has helped her and believe it is helping me. Think positive, keep looking, maybe we will find some good new information. ☺️
  • Twopies
    Twopies joey_12298

    Posted

    I was tested for it years ago by a specialty lab; results were negative
    • Michdonn
      Michdonn Twopies

      Posted

      Hi Twopies, I have also read an article on that. I you read an article a what does cause PMR. I have not and do not understand why more research is not going on. Seems like we have been pushed off to the back burner. Oh well try and stay positive, put that smile on.

      ☺️

    • Twopies
      Twopies Michdonn

      Posted

      There are lots of theories about the causes—I’ve got several that I attribute mine too but the reality is I will never know. I do know that I don’t have the Epstein Barr virus.  Thanks for your kind words of encouragement.
    • Michdonn
      Michdonn Twopies

      Posted

      Twopies, I had chicken pox, a few years back I got vaccinated with the shingles vaccine. There is controversy as to whether this vaccine can cause PMR. I forget the name of the company, but there are a number of links on the internet on the subject. I believe the latest vaccine does not use the same method. Did the shingles vaccine cause our PMR? Why is there such a high percentage of the people with PMR have the same genetic background? There are a few of the simple questions with no answer. The medical profession just found we humans have another organ a few months back. They have been cutting people dead and alive for years. Just think about it for a few minutes, they do not walk on water. Listen to Your Body. Think positive! ☺️
    • Michdonn
      Michdonn Twopies

      Posted

      Oh twopies, I think you will find that chicken pox and shingles are both caused by EBV. ☺️
    • EileenH
      EileenH Michdonn

      Posted

      There is a load of research going on about autoimmune disease from all aspects. Just because it isn't directed at PMR specifically doesn't mean it isn't happening.

    • Michdonn
      Michdonn EileenH

      Posted

      Thanks again EileenH, you are always on top of the issues. ☺️
  • Anhaga
    Anhaga joey_12298

    Posted

    Always look on these celebrity medical sites with skepticism.  Have a look at some of the other things this site seems to be promoting.  I wouldn't embrace any of its ideas without some firm evidence.  There can well be alternative views about certain things but to be acceptable there must be some well-designed research, even if the theories remain controversial to the mainstream.

  • EileenH
    EileenH joey_12298

    Posted

    GOOP is a lifestyle brand owned by Gwyneth Paltrow. I wouldn't believe 99.9% of what is on it - it is aimed at getting you to buy in (literally) to their totally non-scientific preaching.

    • joey_12298
      joey_12298 EileenH

      Posted

      Thank you everyone for your ideas about this EBV cure. I suspected it was not for real but you know how it is...everyone wants hope. It is a shame so many play on our afflictions!
    • Michdonn
      Michdonn joey_12298

      Posted

      Joey, I live a pretty normal life on Prednisone, a bicycle rider and skier. My doctor has tried to talk me about trying another drug, but I am staying on Pred till I run into trouble. As doses have gotten smaller the side effects decrease. I do wish there was a cure and maybe some day there might be. Good luck on the rest of your journey. I try to stay active, positive and smile. ☺️
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