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Erosive OLP for 15 years

Posted , 4 users are following.

carol48091
carol48091

I have OLP for 15 years and for the last 7 years it has been erosive. I've had many erosions cut out and yesterday had a lip shave on my lower lip to remove a erosion that had begun to change into something else. I'm worried the 2 erosions in my mouth could also be doing the same but they are in a place that can't be removed. Has anyone else had similar problems please.

0 likes, 6 replies

6 Replies

  • Las_Rosas
    Las_Rosas carol48091

    Posted

    I've had erosive for 20 years+ and 2 instances of oral cancer in the last two years. Both caught early and totally removed, which unfortunately has included my whole upper jaw and teeth... I've just had oncological implants [5] into my cheekbones and am waiting now for a denture [fingers crossed]. I suggest you all keep a very close eye on anything erosive, [I use a small mirror & torch] & photograph any changes, insist on a biopsy if in any doubt. I've also had laser treatment on my lip/sulcus for high grade dysplasia.

     

    • carol48091
      carol48091 Las_Rosas

      Posted

      Thank you for your advice Las Rosas.

      I will do. I'm pleased to hear your doing well. Where were your erosions,?

    • Las_Rosas
      Las_Rosas carol48091

      Posted

      My erosions were mainly on my upper jaw, on my gums, but also behind my back teeth and into my palate. Most recently I had a patch on the inside of my lip along the sulcus ie tissue between gum & lip...I see a maxillofacial oncology consultant every 6 weeks. Prior to the cancer diagnosis I saw the maxillofacial medical team every 3 months for at least the last 5 years. Your dentist should refer you for regular specialist consideration with erosive OLP. 

      BTW I am teetotal & have never smoked! 

       

    • carol48091
      carol48091 Las_Rosas

      Posted

      Hi Las Rosas

      Thank you for your reply.

      The erosions I have are along my bottom jaw right at the back behind my back teeth left and right so can't really be cut out now. I foolishly stopped seeing the oral team I was with over a year ago because they said they were going to close my case because in the 5 years I had been seeing them the erosions had remained the same.

      I had the one on my lip removed a couple of days ago and I hope they will start to see me again because that one had changed to stage 2.

      My throat also feels sore on both sides occasionally but I can't see anything.

      Wishing you well and a speedy recovery.

    • carol48091
      carol48091 Las_Rosas

      Posted

      I also have never smoked and am tea total. But I had radium and cemo 20 years ago for Hogkins.
  • mary_pooh
    mary_pooh carol48091

    Posted

    Hi carol I only have olp for two years so mine is not that bad yet but I know it is damaging my mouth lining it's so sore what a horrible disease this is . I'm so sad for you and I pray you get better I just wish medical community could find a proper cure soon xx

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