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EROSIVE ORAL LICHEN PLANUS

Posted , 3 users are following.

lee57186
lee57186

I am also new to this autoimmune disorder. I developed symptoms in September 2020 but thought I was having issues due to smoke from large forest fires. It was at my dental check-up the middle of October that my dentist discovered the ulcerations in the back, underside of my tongue and thought it might be oral cancer. I was shocked. I've always been pretty healthy. I've never smoked, drink only beer and very little at that, I'm not nor have I had to be on any daily prescription meds so was in complete denial. The dentist referred me to an oral surgeon. I tried to make an appointment but they referred me right away to an ears, nose and throat specialist who recognized the symptoms and visual evaluation as oral lichen planus.

The discomfort can be overwhelming sometimes. I read that NSAIDS can be a trigger so I don't even take those now. It was pretty bad yesterday and I became very depressed so started looking for a chat site or board or forum to talk to others about it.

The lesion on one side of my tongue was so angry looking that my ENT injected a time release steroid into the area. I have to say that helped in that spot but the rest of my tongue hurts most of the day.

I also read that this can take months to a couple of years to clear up and may never go away, so guess I could use some coping suggestions.

I go back to the ENT on Feb 2. May have to do a biopsy.

Thanks for listening/reading

0 likes, 2 replies

2 Replies

  • marian72381
    marian72381 lee57186

    Posted

    I think coping starts with our acceptance of it. I've had OLP for 15 years and somehow im still in denial. This forum is a good coping mechanism.

    I use a kids toothpaste and avoid spicy/ salty foods. Cortisone cream and allegra tabs help too.

  • Esuma
    Esuma lee57186

    Posted

    Sorry to hear about this - your OLP sounds similar to mine. Mine is also on the tongue and constantly uncomfortable and effects my eating. Good luck with your biopsy

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