Posted , 6 users are following.
I was diagnosed with EN almost a year ago. They first told me it was caused by an allergic reaction to a birth control. Yes some of my symptoms got better after taking it like my joint pain but I still get the raised bumps that hurt so bad all over my body the only place I have not gotten them are on my face and stomach. Has anyone had other sypmtoms like uncontrolable chills, fever, and night sweats everyday and the sypmtoms last anywhere from 4-6 hours. I never know what time of day it will happen but its usually in the afternoon. The night sweats are at night of course. They have tested me for any underlining condition that might be causing it and nothing! I have been on prednesone off and on for almost a year and feel great when I am on it but can never make it more then two weeks without it. I know prednesone is not good for you and can cause health issues so I am really hoping I can find a medicine that will work. They currently have me on Plaquinell but it could take anywhere from 6 weeks to 6 months to work I feel like I will never be able to live my life!! I have 4 kids, husband, and a full time job!! Someone somewhere has to have answers.
0 likes, 7 replies