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I'm almost 37 years old and had my second child 7 months ago. 8 weeks ago an unexpected hot, red tender nodule came up on my left leg while on vacation. I watched it a couple of days and then contacted my dr. He diagnosed it as cellulitis and prescribed bactrim. After a few days on the antibiotic it wasn't better. I had an ultrasound done and it didn't show anything. The same day as the ultrasound is when another nodule appeared on my right shin. I watched it for a couple of weeks until the pain was enough to make me go to the urgent care because we were getting ready to leave on a 10 day vacation. I actually thought I had cellulitis then. When I met with the urgent care dr she diagnosed me with EN. I had a chest x ray, CBC with diff, strep titre, ANCA, C3/C4 complements, ANA, ESR and CRP. With the exception of slightly low C3, all was normal. I was scheduled to see a rheumatologist but when she reviewed my blood work she cancelled the appointment because she doesn't think I have anything connective tissue going on, which was good news but still left me with no answers. I then met with my Dermatologist. She didn't want to biopsy because of the location and the scar it would leave but recommended I take Aleve 2x/day for 2 weeks and then follow up. The aleve did help with the pain but I then developed 2 new modules. On my follow up she ordered a blood test for sarcoidosis, mycoplasma pneumonia and TB. All were negative. She still didn't biopsy but feels very confident it's EN. She also prescribed 2 weeks of prednisone. After a week of being stubborn I finally started taking it this morning. My nodules will seem to be getting better one day and then the next they are flared up again. I have had bouts of just feeling achy in my back and really tired throughout all of this. It's like one day I feel like I can conquer it all and then the next I feel like crap. I am very sleep deprived with my baby who still wakes multiple times each night to nurse which doesn't help. The nodules are painful to the touch. I hate complaining to my husband about it but after awhile it starts to affect me emotionally too. I am a chiropractor so my family tries the natural approach so I have taken more supplements than I can type and continue to daily. I've gone to my acupuncturist, used a lymphatic drainage machine, had a live blood analysis, iridologist, regular adjustments, very minimal sugar intake, juices, green smoothies, epsom salt baths, essential oils, heat/cool packs and the list goes on. I don't take birth control and haven't for 10 years. When I look back, during both of my pregnancies I experienced symptoms of EN but no doctor could ever figure out why my legs hurt with joint swelling and pain and it eventually went away. Needless to say I'm frustrated as I'm sure everyone that has had this is and it can be consuming most days. I still don't have answers. Has anyone taken the steroids and they never came back? Has anyone never found the cause of their EN? Does anyone have anything natural they have tried that worked for them? Does anyone think stress caused their EN? Any advice would be appreciated. TIA.
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