Esmya
Posted , 6 users are following.
Back in 2012 i had a fibroid embolisation proformed it stop my periods after 3 months.But brought on the early menopause at the age of 46 which i was told would not happen. My fibroid shrunk and my belly went down to has it was the size of a cricket ball on my left side and sitting on my bladder.
3 years later i am back at my Gp with back ache and pain in my right hip and after a scan i have another fibroid sitting in the front wall of my uterus which is at the moment the size of a golf ball.
I have two options removal of my uterus n tubes or to take Esmya for 3 months,i don't know which to do has i was under the impression that being on the menopause n the embolisation would prevent any more fibroids occuring. Im 50 next year do i take the Esmya and hope no more return or go for the opp?
0 likes, 19 replies
Cookiesson kizzy21
Posted
If you have an embolisation after 40 one can def go in to early menopause. The studies that I've done on this matter leads me to think that embolisation in general decreases ones amounts of egg more rapidly than others whom have not had an embolisation. So not strange that it happened at 46 for you.
Fibroids can also occur again yet one's had an embolisation. Fibroids are smart and try to find blood supply from other parts of the uterus that might not have been effected by the embolisation, or even other body parts in your stomach.
The way that I think about it, is that the uterus is good for other things as well as childbearing. The way that I see it, I dont think that one should remove the uterus unless one REALLY has to. Try the Esmya for 3 or 6 months. It can help. It helps a lot of people. Thats my advice.
kizzy21 Cookiesson
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fibroidy kizzy21
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kizzy21 fibroidy
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fibroidy kizzy21
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It really hope te esmya works for you also , as a surgery is not an easy ride.
dee49358 fibroidy
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fibroidy dee49358
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Drugs effect everyone in different ways, but not come across anyone having any horrible side effects.
dee49358 fibroidy
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fibroidy dee49358
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As for me, my fibs started at 8cm a few years back, went on a anti ostrogenic diet for over a year but they grew to 11cm, then went on Esmya for 3 months and they went back down to 8cm. Now i had a myomectomy 2 weeks ago, so at home recovering, they took some out, but there was some they left behind, so going back for an mri. So at the moment, will go back on diet changes and wait for my next periods to see how they are. My main problem the fibs were causing were the heavy bleeding and passing massive clots which resulting in bad anemia which led to a blood transfusion.
I hope you get somewhere with the consultant and you at least can give the Esmya a go, before any surgery, i would say a hysterectomy is a bit drastic. The myomectomy recovery so far is ok.
dee49358 fibroidy
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fibroidy dee49358
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I am in the process of putting some info together on diet changes, when i have it i will pm you or post a link here
arkana kizzy21
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I took 3 rounds of Esmya, and the last round took it 14 weeks instead of 12 weeks. I know it is only allowed for two rounds. I had no side effects and felt great on Esmya. However, one week after stopping the last round, i started bleeding enormously. Since my fibroid was on the outside of the uterus, bleeding was not one of my symptoms, and this was due to the building up of the uterine lining while on Esmya. I lost half a liter of blood on a saturday, was in A&E, then went home, again lost half a liter the day after , admitted to hospital, then another half a liter on wednesday. I had the hysterectomy that same day, after receiving a blood transfusion to increase the Hb level.
I have done everything to avoid surgery (HIFU, UAE, Acessa, Esmya) nothing helped, mine was about the size of a basketball, weighed 3,5 kgs. Luckily i had a very good surgeon. Surgery took 1,5 hrs, waking up 2 hrs. I slept for 10 hrs, stayed in bed the day after. Had no pain (and did not need any painkillers), was a bit tired for two days, went home on day 4 and felt 10 years younger since. I am not saying surgery is a bliss, everyone is different, and for some it is harder than others. But Esmya will only give you temorary relief and i do not think you should use it longer than approved.
Acessa is promising, although it did not do anything for me, likely because my fibroid was too large and outside of the uterus.
kizzy21 arkana
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omg that sounds really bad and must have been terrifying.
My first fibroid bk in 2012 was size of cricket ball n because my body felt terrible it got detected.
I thought embolisation was the prayer I was looking four and like you wanted to save my womb. Three years on nearly I have one sitting on the front wall n again feeling not good. I'm hoping when I turn 50 next year nature will take its course n put a stop to any more growths. I'm glad your well again n no more growths.
undecided arkana
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Thank you for telling your experience. May I ask you your age?
I have been defending my uterus for 3 years, (I have 2 almost 10 cms fibroids and several smaller) but lately i have been cornered, 2 weeks ago I had my first blood transfusion, and started my second round of esmya (not very succesful first time in shrinking them) so I have only 2 options at this point: embolazation and partial hysterectomy, i am only 34 years young hehehe....did you contemplate the embolazation?
Thank you in advance for your time.
Cookiesson undecided
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I feel you.
I'm 37 years old and haven't had any children yet and have had problems with fibroids since my first operation in 2011.
In 2012 I was told I had a really big one and after that things has just escalated.
I've gone through 2 rounds of Esmya - 6 month - didn't help one bit... Turned out that I have another genetic than the ones that Esmya helps.
I've tried pretty much everything else there is under the last 3 years.
So I hear you.
I do not think that hysterectomy should be the very last option, for every women. Especially not for someone as young as you!
I had an embolization/UFE done on Nov 11th 2014.
It helped me with the size, like 50 %. The size of the whole uterus and the fibroids. BUT... since I'm truly determined to have children within 2 years, it's tricky with UFE... which I knew before the operation… Which was the reason that I hesitated so…
But my doc thought that UFE was my best shot, since she thought my fibroids were too big to be able to operate with regular myomectomy.
But now I've learned that that was wrong.
If a doc say they cannot do a successful myomectomy on you, referring to the size and amounts of you fibroids, it's only because these doctors aren't good enough.
After I have gone through the UFE I have found 3 docs in the US that could have operated with myomectomy on me without any problem.
But... I just didn't know...
So... one needs to do ones homework... cause the docs won’t tell you the truth... or they don’t know any better.
If you can find a truly good doc, that person will be able to operate on you and you won’t be needing a hysterectomy.
So where do you live?
I know of some really good ones in the US.
I myself live in Sweden, and I had a really hard time finding a really good doc in the whole of Sweden... so...
undecided Cookiesson
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thank you so much for replying!
I am currently living in Canada, and this hard time began in june 2013 ( I knew I had 2 big fibroids since 2008 and had a long menstruation, but not very heavy actually, just heavy flow the first 2 days, but then just spotting until day 9 or 10).
In 2013 I was able to have health insurance and I had a GYN that is when the situation went bad. The GYN gave me Lupron injections to control the bleeding, it never happend, actually I did not stop bleeding for 10 months, not even 1 day! The 2 big fibroids were almost 9 cms, Lupron shrunk them like 1 or 2 cms, but having Lupron was a nightmare, I went to the hospital several times due to heavy bleeding, my anemia was dangerous. Then I refused to have more Lupron, I was off medications for 3 months , with long periods, I believe my hormones went mad with all those chemicals I had, but In march one day I started bleeding heavily and 2 hours after I past out on the kitchen floor, so to the emergencies again. The GYN put in Minera coil, and if I was living a nightmare before, this was HELL!! It stopped the bleding but I was extremely bloated and in pain for a month, then the menstration came and i practically delivery the minera coil while experiencing the worst pain I have felt, yes i believe I was having labor pain, they gave codeine, it barely gave me some relieve. Then I was off medications again aprox 3 or 4 months, I felt better but bleeding heavily. I decided to change GYN, finaly In september last year I had one and I started esmya, (here is called Fibristal). I did not stop the blleeding until 2 months after, so I had like 2 dry weeks. I finished the first round first week in december and on 24 i had one of the worse hemorrage! I think I was lucky i did not died. I had the 2 months off and started again this month, and also had a blood transfusion. I do not want to have children, it never was my dream or desire.....
arkana undecided
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