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Essential Tremor Disorder

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tinamarie1963
tinamarie1963

I was diagnosed 2.5 years ago with ET at that time it was only affecting my predominantly in my left hand, minimally on my right hand, and my speech. Now I have full body tremors which get really intense when my anxiety level rises my legs over the past 4 months began to feel extremely weak and I began having sporadic falling spells. Research shows everyone is different. Unfortunately for me all of the known medication for tremors I have not been able to tolerate the side effects. My tremors started the day of getting a spine epidural injection in my neck. I often wonder if anyone else out there with the ET disorder has had a similar occurrence. 

1 like, 2 replies

2 Replies

  • martha27955
    martha27955 tinamarie1963

    Posted

    I am so sorry that you cannot tolerate the medication side effects.  I am assuming you were started on something like Primidone and instructed to begin the treatment at a very VERY LOW dosage?  I was diagnosed earlier this month and was started on 25MG Primidone (a 50 mg tablet cut in half).  The 25 MG made me very lethargic so I cut the tablet in 4 pieces (approx 12.5 mg dosage).  I was up to two 25 mg daily but found that the medicine is not working.  I have opted to ween off of the medication instead of increasing it.  People can say what they want about that. Yesterday I took a shot of very strong alcohol and was fine in 20 minutes and could have performed any meticulous task for the remainder of the day.
    • tinamarie1963
      tinamarie1963 martha27955

      Posted

      Yes, that was one of the first medications my neurologist tried for me, unfortunately, the side effect we're too great and intolerable. 

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