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Etanercept

Posted , 5 users are following.

k81753
k81753

Hi my consultant has suggested i start on Etanercept, does anyone have any experience of this particular DMARD, i would appreciate some honest info, i have been on most other DMARDS with varying degrees of success over differing lengths of time, i have had this disease for over 8 yrs and only recieved a firm diagnosis today

1 like, 7 replies

7 Replies

  • justinh
    justinh k81753

    Posted

    Hello Kate or whoever you are. I started Enbrel in ~2008 or so after trying several other meds. DMARDS did not work for me. I don't remember how long it took, but it was a relatively short time. The symptoms almost disappeared and eventually the psoriasis also disappeared. I was on a weekly injection and after a few years tried to spread them out but often the symptoms would come back after a couple of days. Anyway, it worked for me completely. Maybe I just got lucky. Hopefully it is the same for you.

    Justin (from Canada)

  • Okapis
    Okapis k81753

    Posted

    Thats really good news! I was on it for 12 years having "voyaged" though most of the alternatives. Once it started working - normal agonising wait, bliss! No problems although it did give me headaches initially, immediatly after the injection, soon overcome.

    Eventually all good things come to an end..and etanercept stopped working. I developed inflammation in the jaw. But then I was put on a better one...Cimzia.

    Apparently the biologics therapies do reduce over time but 12 years was not a bad innings. And you can drink alcohol again if thats your preference.

    I hope it works for you really quickly!

     

  • sheila65847
    sheila65847 k81753

    Posted

    Hi k8

    Etanercept was brilliant for joints but my pustular psoriasis went crazy; please note this is MY experience only. So far I haven't found a medication to manage my condition - I'm just unlucky with med so far, here's what has been tried and failed - methotrexate, sulphasalazine, leflunomide all DMARDs now for the biological treatments Etanercept (Enbrel), Humira, Stelara & Cimzia, but I must STRESS I'm a difficult patient. I know many people who successfully manage PsA with one or a combination of the drugs I've listed. I'm waiting for a new drug to be licensed by NICE. My condition is currently treated with steroids (oral, injections & infusions) plus painkillers. Try Enbrel, it really works well for looks of people, make sure you get your bloods checked each month. Good luck x

    • Okapis
      Okapis sheila65847

      Posted

      Ow Sheila! Our bodies are so uncoperative sometimes! Thats really a case of very bad luck. My sympathy!
    • k81753
      k81753 Okapis

      Posted

      Hi, thanks for the reply, I feel alot better about the treatment now, I hate all these drugs but I do want to feel better and enjoy my life, some days I physically can't get out of bed, here is hoping for this to work

      K

    • Okapis
      Okapis k81753

      Posted

      Yes ! But in the end its a trade off between quality of life now and some future problem. If youre older, its easier! After all the grim reaper gets you sooner before problems can set in!
  • geraldine87987
    geraldine87987 k81753

    Posted

    Hi i have had PSA for twenty years and for the last 8 years been on enter cent it gave me a new lease of life after trying all sorts of medication I would definitely say try it.
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