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ETD and Cant Cope

Posted , 6 users are following.

sharonmac
sharonmac

I have just joined this page and I feel almost relieved to see that other people struggle with the things I do.

I have been suffering from ETD for about 2 years. But recently feel like my life has been taken over by my ETD. This last episode is the longest I've suffered (4 months). The pressure and pain in my left ear is immense, and my left nostril feels like it is going to explode.

I am using Flixonase nasal spray but it is not making ANY difference at all.

Any advice or someone else who understands would be great x

0 likes, 21 replies

21 Replies

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  • judi44826
    judi44826 sharonmac

    Posted

    Very sorrow Sharon.

    I've had ETD for 30 years since flying home from Hawaii with a cold many years ago.

    Am lucky to have the House Ear Clinic here in LA and have seen them. Nothing much helps actually. Had the balloon dilation and I don't really see a change. The tube they put in two months ago got infected and had to be removed. Now I have a hole that won't close in ear drum !! It leaves me with dizziness and loud hissing noises.

    Who ever thought an ear could change your life so much ?

    I feel for you. This group is very supportive !

    Has anyone had a tube removed that won't heal ? Fluid builds up, then comes through the hole and drains !! Yuck

    I'm not sure what is next.

    Going to ENT later today.

  • roy98218
    roy98218 sharonmac

    Posted

    Hi sharon,

    I've used a couple of different steroid nasal sprays and they do nothing for me either, but that seems to be the default for GPs.

    I changed my GP and got a referral to an ENT specialist. The specialist recommended using Otovent balloons, you blow up a balloon through your nostril to open the eustachian tubes. You can buy these online, at least then when you get to see a specialist you've already tried the first step.

    I've been using them for a couple of weeks, but i'm not sure they're making a difference. Although my vertigo has reduced, it been 3 months and it's just slowly reduced naturally.

    Good luck, I know the feeling of pressure is unbearable and feel so sorry for anyone dealing with it.

    • helena34458
      helena34458 roy98218

      Posted

      Hi Roy,

      Thats the surgery i had done here in Canada Balloon Dilation to try and ipen the Eustachian Tube it wasnt covered it costs 5000 anyhiw it was unsuccessful i was sent to this surgeon @seejng my ENT

      Wish i had knwn about what youre talking about i would of tried that first before ungoing the surgery 😔😔

  • michael11955
    michael11955 sharonmac

    Posted

    Thanks for the coffee advice Mark..I'll stick to tea instead & see if it makes a difference.Also the explanation of msg

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