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ETD? TINNITUS? ACID REFLUX?

Posted , 5 users are following.

eyesonfire
eyesonfire

Hi. I am new to this. I live in Canada. June 2014, a year ago, when my ear started popping out of the blue. It was my left ear only. I saw my GP who suggested allergy medication and nasal spray. I tried both and it did not work. I had 2 more nasal sprays and again, did not work. I went back to my GP and referred me to an ENT. I had to wait 5 months ... Month 5, I was still suffering from ear popping and my hearing started to seem muffled and lots of ear pressure and fullness in both ears. I saw an ENT who had nothing to say or helped at all. He said I have ETD and good luck. Only suggested an ear popper device. I bought an ear popper which costed me almost $200. It works ... but only for a few minutes because my ears will feel pressure and full again. It is like I have to use this device 24/7. Month 12, It is now June 2015 .. I am still suffering. I had a hearing test done 4 months ago and found out that I lost 10d in my left ear. I wanted to cry. Why? Because I am already hearing impaired. I wear hearing aids in both ears. I now have anxiety and will probably have a breakdown soon because no one will help me. Two weeks ago, I am hearing humming in my right ear. It is very upsetting and annoying. It won't go away either. The popping in my left ear only happens when I am laying down, sleeping. It goes away when I get up. All day, everyday, I have fullness, pressure in both ears and now I have a humming nose in my right ear. I went back to my GP who referred me to a second ENT. I have no idea how long I will be waiting .... I am only 24 years old, female. I have no idea what to do anymore. I also have acid reflux my whole life. I don't know what is going on

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  • eyesonfire
    eyesonfire

    Posted

    Anyone who is still suffering from ear problems should ask their doctor about superior canal dehiscence (sscd) which can be easily missed on your scans. it is a hole inside your ear bone which can cause all your symptoms. I just watched a show lastnight about a woman who suffered for eight months and saw ents who kept telling her to deal with it until her husband took her to another specialist who looked at her scans and figured out the problem. Had surgery and now she is all better. Might not be your problem but worth a try. Bring this up to your doctors !! Keep me updated and thanks again. I hope I recover soon and we all recover soon.
    • vas1972
      vas1972 eyesonfire

      Posted

      Update: my biopsy results came back negative for malignancy but positive for lymphoid adenoid tissue in other words I have adenoid hypotrophy which combine with the GERD can be the cause according to the ENT. Next stop MRI.
    • eyesonfire
      eyesonfire vas1972

      Posted

      Interesting! At least you're on the right track. Can they fix this? What is the MRI for? I see my second ENT in seven days. Nervous. I just hope he doesn't shoo me away ... like the other ENT did. Fingers crossed. Hope we get better soon!
    • vas1972
      vas1972 eyesonfire

      Posted

      I'll keep my fingers crossed for you...I know how you feel it sucks when they blow you off like nothing is wrong and we suffer for months on end.

      As for the MRI they want to see if a clear picture of the what's going on just in case the lymphoid tissue isn't the cause.

    • eyesonfire
      eyesonfire vas1972

      Posted

      Saw a second ent today. Drove two hours to see him for nothing .... again. Told me to live with it, nothing he can do. No advice. Said it was eusthasian dysfunction tube so he thinks and told me he can't help. No cure. No treatment. I was like k .... My tinnitus started two months ago and he's like I have no explanation for that. If you're having hearing loss, go get a cochlear implant? I'm like uh no ... I will not? How will that relieve my symptoms. I'm so upset. I actually had to ask him if he can do a nasal scope and he was like saying why? I said ... Just to check? So he did it and say everything looks fine. Kept saying my ears look fine. I asked for an MRI and he said why? I'm like .... And he said I will look into it. I feel like crying. I wish I knew what to do. I still have no answers today. Waste of time and money. Hope you're doing well though. Thanks and take care
    • vas1972
      vas1972 eyesonfire

      Posted

      Ok that really sucks!!! I feel for you... can't believe most doctors brush this stuff off when we've been suffering for months. Most don't take it seriously enough. I guess I'm lucky that my GP is actually very thorough. When the biopsy results came back negative he right away scheduled me for an MRI to get a better idea of what's going on before sending me to remove the tissue blocking my eustacean tube. The only crappy thing is the long wait times for MRI's in Toronto so I may fly to buffalo to get it done.

      Did you follow up with your GP? Maybe he can get you in for an MRI like what mine did. Keep me posted and good luck!!!

    • eyesonfire
      eyesonfire vas1972

      Posted

      Yep. I had high hopes for this second ENT thinking he would help me but no, he shooed me away just like the first one did. Wouldn't give me a proper examination, had to ask. Should I keep fighting this? I want to but It has been a year and nothing has been done. He told me to suffer and live with my symptoms ... upsetting. I have a follow-up appointment next Monday to see my family doctor so I will have to talk to her and see what else she can do. I will ask for an MRI. Don't see why not ... you would think doctors would like to check and rule things out or maybe they can figure something out. Not sure what else to do ... I am still using my nasal spray avamys once a day but doesn't do much. I will try and keep fighting. Hope you find some answers too! Good luck with your MRI and thank you.
    • eyesonfire
      eyesonfire vas1972

      Posted

      How are you doing? Did you get your mri results back yet? I saw my family doctor a month ago and I asked for an mri but haven't got one done yet .. Still waiting for an appointment time. Just suffering from ear problems and my new recent symptom which is tinnitus ... my god it sucks. I hope I get better soon and the same goes for you! Take care
    • vas1972
      vas1972 eyesonfire

      Posted

      Funny you messaged I'm at my follow up appointment as I type this. Line up is a little long but will post once I'm done
    • vas1972
      vas1972 eyesonfire

      Posted

      Waste of my time...took 5 hours to see the doctor to tell me everything looks fine and that I have 2 options, live with it or get tubes put in to see if that alleviates the pressure. So now I'm stuck don't know what to do. Going to go back to my GP and see what he has to say.
    • vas1972
      vas1972 eyesonfire

      Posted

      No choice now but to keep fighting as annoying as it is. How are you feeling?
    • eyesonfire
      eyesonfire vas1972

      Posted

      Yes we have to keep fighting. Don't give up! Stay positive. I hope I get better soon and the same goes for you. I am okay ... Still have tinnitus. Month 3 now. It has gotten louder. Very annoying. Just waiting for an MRI scan sad Just frustarting and upsetting.
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