Eustachian tube dysfunction for 6 months... i'm suicidal and not sure what to do....?
Posted , 21 users are following.
I've had eustachian tube dysfunction in both ears ever since flying long haul with a bad flu/cold in November last year and nothing since has eased my symptoms. I went to my doctor a month ago and he dissmissed it really, told me to use a steroid nasal spray and do valsalva every hour and it should go away in a couple weeks. This spray has done nothing and I actually feel like it has gotten worse the past month. It causes a feeling of unbearable pressure in my ears and sometimes in my head and nose, affects my hearing, causes crackling and popping when i swallow, yawn etc. and makes me so miserable. If theres no cure for this then I'm not sure I want to keep living. I'm only 18 and have never felt this way before but I really feel so hopeless. My doctor just won't take it seriously as I feel he just doesn't know what to do. He said he would refer me to an ENT but reading online I feel theres no way an ENT can help me. After searching this on the internet for the past 6 months and reading all the stories of people never getting cured of this and having it for tens of years I honestly just want to die. I'm suffering from a tremendous amount of anxiety too as I am due to fly to Greece from the UK in the beginning of July and am sure that it will aggravate the problem. If this happens I don't know what I will do apart from just end it... I'm scared of feeling like this and wish that I just had my old ears back so much I'm crying as I write this. I have no idea what to do no one around me understands I just wish there was something that would cure me. Before this I loved life and was excited by the prospect of my future but now this condition has taken over every waking second of my life, driving me insane. I'm so lost and hopeless and in pain I don't know what to do... If anyone knows anyone who can actually help me in the UK please please get in contact. otherwise I fear I may do something stupid before the year ends... :'(
2 likes, 87 replies
BeefLomain caddddy
Posted
i have been deaf in my one ear all my life and have the worse case of ETD IN MY OTHER EAR with balance issues for many ears. i feel alone and hopeless too 😦 been to too many ear doctors in my life but none of them are able to give me any clear answers or treatment. its maddening
jessica86474 BeefLomain
Posted
i feel so sorry for you i just dont undertand how no one has found a cure for this it is so horriable have ypu tried the The NeilMed x
michael11955 BeefLomain
Posted
Dear BeefLomain, I sympathise so much with you.After seeing several doctors & 4 specialists over the last 3 years,my GP came clean & told that he had no idea who to send me to & that I have to live with it.
BeefLomain jessica86474
Posted
yes i have tried neilmed but because i have a hole in my eardrum i cant use it because water gets in my ear and makes me dizzy 😦
BeefLomain michael11955
Posted
this has led to depression and sometimes you just feel like giving up its so hard to live with this chronic dysfunction 😦
jessica86474 BeefLomain
Posted
there has to be something they can do have you asked about grommets? or the balloon surgery they can do? does your ears pop or are they permantly blocked x
michael11955 BeefLomain
Posted
I go to mindfulness classes & also practice meditation which actually helps.The nice thing about this way of doing things like these is they only have good & pleasant side effects,unlike some of the stuff the doctors have to offer.
anne05078 caddddy
Posted
Sorry Denise, you're the wrong one. However, still suffering like us all. I haven't heard back from the English girl that lives in France. I too live in England and our
climate plays havoc with sinuses and allergies. I think to have a blocked nose (which I also suffer, left nostril) is preferable to suffering blocked ears. At least one can use Otivine to shrink nasal passages....nothing unblocks ears. About time they found something that would.
Anne
jessica86474 caddddy
Posted
does anyone no if they do the bolloon surgery in england x
michael11955 jessica86474
Posted
Hello jessica86474.I'm in England too & from what I learnt is that they do occasionally do balloon surgery,but the side effects aren'tvery good & also that the success rate is somewhat low.
oliver79637 caddddy
Posted
I think I've posted before but my etd was caused by an unbalanced bite. My jaw muscles tensed and caused my et to block, giving me crazy popping and fullness.
celine44678 caddddy
Posted
Hi Cadddy just wanted to know how you are getting on with your ETD? i had exactly the same happening to me. I took a flight while having the flu and my ears changed from that point. I feel constant head pressure and blocked sensation in my ears. My neck is also tender no matter how much i massage it. I did several tests but all results point to the same conclusion; nothing seems to be wrong.. would love to know how you having been managing it until now.
raychel06750 caddddy
Posted
Oh I know exactly what your going through. I've been suffering for 15yrs now it has overtaken my life I've become very antisocial . I still have had absolutely no relief from this condition. I've thought of just ending it all bcuz this is not a case of quality of life this is no life period! one side is constantly plugged while the other only sometimes. the pressure inside my head & an uneven pressure is enough to make me snap at people for no reason at all it never goes away.i don't know what to say bout it it blocks my nose from draining & I always have to gag w/phlegm it's so embarrassing