even after possitive test for co infections doctor still not convinced its lymes
Posted , 3 users are following.
I am gutted after finaly getting a possitive result from porton down ( co infection anaplasma) my GP has considered refering me to infectious diseases specialist but no rush and doesnt think my symptoms- all possible lymes are connected. lymes action have said they will write to my GP but havnt yet and i cant get a responce to my emails. any advice on what i can do now
0 likes, 16 replies
aromasammy vicky89033
Posted
I hope you get better soon.
Jo-Anne1803 vicky89033
Posted
You have a tick born infection with positive results to back up. They should treat accordingly, if they don't when you have active symptoms complain to the local pals department at that hospital, (for goodness sake if they don't treat positive results we really are flogging dead horses with any hope that things are changing).
However the treatment you do get is highly likely to be completely inadequate, if I were you I would hope for some IV antibiotics and then have a follow on plan to continue antibiotics with a Lyme literate doctor. Symptoms dampening down does not mean Lyme and friends are gone! I was told after a course of antibiotics it will take time for symptoms to disappear. They didn't disappear, things got a lot worse. Have the long term plan.
Ps infectious diseases consultation is usually an experience in itself. Dont speak about 'Lyme' too much. Your symptoms and results should do the talking. Take somebody with you. Male in my opinion.
Good luck hopefully a correct diagnosis will get gp on side.
vicky89033
Posted
Jo-Anne1803 vicky89033
Posted
the last thing we need with this disease is to be battling. Yet that's all we seem to do. My results went missing too. I mean you couldn't make half the things up we have to go through. I don't trust the medical knowledge of 99% of uk based doctors when it comes to this disease.
It's a complete circus.
Infectious disease took about 6 weeks for my appointment. Do post and let us know how you get on.
vicky89033 Jo-Anne1803
Posted
Jo-Anne1803 vicky89033
Posted
Fingers crossed you get an open minded specialist who has common sense not dictated by outdated guidelines. You absolutely should with positive result?
I get help privately. It really shouldn't be this way. Shame on the nhs helping keep people sick. Still no sign of change.
vicky89033 Jo-Anne1803
Posted
Jo-Anne1803 vicky89033
Posted
vicky89033 Jo-Anne1803
Posted
vicky89033
Posted
Jo-Anne1803 vicky89033
Posted
Nothing is straightforward with this disease! Good news about the charity approaching your gp. Make sure a copy is put on your file and not just binned!
craig60111 vicky89033
Posted
How long ago did you get lymes and did you get a posative test for lymes as i was posative 10 years ago ive just been re tested for lymes which was negative but i want an extended test as i have have lots of health issues im trying to sort does anybody know if infection can stay in the body for 10 years then re apear
Vicky how long have you had anaplasma
Regards Craig
vicky89033 craig60111
Posted
craig60111 vicky89033
Posted
Did the course of doxycycline antibiotics help with your symtoms or do the doctors prescribe other treatment if you have anaplasma can you list some of your symtoms its interesting to see how they compare to mine
Headaches joint pain mainly in the hands facial numbness right side very bad tinitus fatigue irritable. shall i keep requesting the extended test or is it a waste of time
craig
vicky89033 craig60111
Posted