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i was diagnosed 4yrs ago with both chiari malformation and the syrinx in my spine. After the decompression I had a lp shunt fitted but soon removed by emergency surgery because it caused me so much pain. I have had 14 lumber punctures because of raised pressure around the brain, I now have the vp shunt fitted and still suffering with the painful headaches,numbness and always tired. I also really suffer with both my bladder and bowel and I get this horrible stabbing pain in my right side but all my pain seems to be on the right. At my wits end now because my last mri and ct showed nothing. We all know our own body and when something is wrong but no one will listen to me. Does anyone understand how I feel please and I'm lucky if I get 2 hours sleep at night and spend all day exhausted
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