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I would just like to raise awareness of a lunchtime event taking place on r 31 October for members of the two Facebook support groups for Hemifacial Spasm (International Support Group & Worldwide Support Group) This event promises to be an excellent opportunity to meet up with fellow sufferers and people who have had successful MVD surgery. If you are interested in attending please check out either of the facebook pages where you will find full information posted in the events under "Hallowe'en High Jinks".

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  • Posted

    Hello Julia

    I'm not a facebook member but would love to go, i'm awaiting my op date which should be next month. Can you give me the details please?

    Many thanks


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    • Posted

      Hi Sue! Thanks for your reply...we'd love you to join us if you can, and I've pm'd you the details. Where are you having your surgery? I really would recommend you having a look at either/both of the support groups on Facebook...They are both incredibly well subscribed and there is a wealth of experience there from some lovely people who are always ready with answers, advice and encouragement. It was really the support that I received from members of the groups in the run up to my surgery and during my recovery that prompted me to suggest arranging this event.
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    • Posted

      Thank you; I'm having the op at Bristol by Nik Patel. I have had support from Roseanne on this forum who supports a lot of sufferers & had her op done by him with great success. I managed to ask my doctor to write to him & succeeded to get an appointment.

      I will let you know ASAP re 31st. Just checking travel possibilities as coming from Devon

      Kind regards


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