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also has Fibro, and they say, 'well such n such has Fibro and they are fine, they just take it easy and take meds, and they are fine.'
Is it just me that's gets a tad frustrated at the level of ignorance, (not their fault obviously as ignorance is bliss!)
I know I shouldn't get flustered and frustrated at such comments, but it just bugs me to the core some days and doesn't help. Again it is that 'guilt' thing that creeps in. Am I supposed to feel better or cured because of this other person, 'such n such' takes it easy and takes meds and they get on with life fine!...
Well get on kind of well for 4 - 6 hrs maybe 1 day out of 7 months if I am lucky and I'd swear there wasn't much at all wrong with me, Till, later in the evening or the next day, BAM! Practically bed ridden or near to it, sleepness nights etc... ArrrrG!
I then have to try and educate them about folk getting symptoms in only 1 limb or 2 areas, some folk experiencing slightly less pain, burning what ever or mobility restrictions and about the remissions to very little or NO remissions... Grrrrr I then still get the feeling that they think your pulling their chain... This part of the living with the dam issue of Fibro gets me down as much as the complaint it self. Sorry just having a dud few days and feeling a tad low on it. With the head not wanting to give me a break, ears screaming, and body aching, thumping and muscles in my back and neck want to rip off my bones... grrrrr
When I get like this I cannot use wheat bags as they trigger a Volcanic heat erruption from head to toe... I hate it. so I try to keep physically a bit cooler to ward that off those heat flares...
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