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Every ailment blames on Fibro?

Posted , 9 users are following.

cheryl21682
cheryl21682

Hi,

I am new to this forum, but have read some of the posts and found some great advice.

My problem is slightly different than most I've read. I've had an unbearable headache for two months solid. My GP ordered an MRI which showed white lesions on the pons of my brain. Along with the headache I have been dizzy, exhausted, and more forgetful then with fibro fog.  My GP sent me to a neurologist who spent very little time with me and after 12 minutes, ruled out MS or anything else. His sugestion - wait 3 months and we will do another MRI and see how the lesions look and how I feel. I gave him a list of symptoms and he said "that's all your fibromyalgia."  That was it.

I cannot wait 3 more months. I am on some anti-seizure medicine to help with the headache. The headache subsided the first day, but this is day 3 and it's back full blast. 

My fibro diagnosis was 26 years ago. I've learned to live with a lot of pain and do my best to get through the day. However, this headache is brutal and exhausting. I'm frustrated because this neurologist just blew it off as my fibro. It really feels like it's not fibro, it's something else. 

I have an appointment for a second opinion, but couldn't get in for 2 months. 

So frustrated. So is my boss who chewed me out for being forgetful and doing my job half-you know what. 

Anyone else have something else blamed on your fibro when you knew it was NOT fibro? 

I would appreciate the support!

1 like, 17 replies

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  • kim91947
    kim91947 cheryl21682

    Posted

    Hi Cheryl,

    Sorry to hear your having trouble finding the right treatment through your doctor. Consider checking out Stem Cell of America. Their clinic has treated many patients with fibro and fibromyalgia related symptoms for many years.

    • cheryl21682
      cheryl21682 kim91947

      Posted

      I will check into them Kim. Thank you! 

      One other thing to add to this discussion. I was fired from my job yesterday after a week of being sick. Of course my boss was very careful NOT to blame my termination on illness. Rather she gave me very lame reasons - sent her an incorrect map of something (I blame Mapquest) and I asked to work from home two of the days I was sick.  

      Nice, right?

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