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8 years of this, under 3 diff hospitals, tried every remedy...it's so unfair there's nothing to help!
I had a thyroidectomy back in 2007 at 22 years old having developed graves disease (thyroid eye disease). Since then I have had non stop itching and burning to my upper thighs and upper arms (daily) other areas itch from time to time. Some days I can't even dress... it's effecting my whole life. So distressing especially now I'm a new mum even more so. Previously I was suicidal over my skin but now I have somehing to live and fight for... my son and my hubby. I'm determined to not let this beat me but can understand why people say 'a life like this isn't worth living' because I've felt like this too many times...
I wasn't going to have a baby for the fear of the skin worsening,then told because of my health it'd be unlikely to conceive anyhow... last ear after getting married I got pregnant. The first 1-3 months were a nightmare unable to take antihistamines the times I did I threw up immediately like my body was rejecting them. The Dr gave me an alternative Puriton which is safe to use during pregnancy but not strong enough to use previously. .. this helped and months 3-6 (second trimester) of my preg my skin was amazing. So my questions to the Dr is what happens to your hody during these months as theres obviously a hormone or vitamin which helps as I was able to sleep,wear tight clothes leggings and jeans and just be happy! 6-9 months (third trimester) well... horrendous. Living on 3 hours sleep if that most nights my skin drove my insane to the point I was throwing up crying all the time from the pain of the itching and burning. It was so bad the end of my preg I had to start my mat leave earlier and also I came downstairs 2am one morn as I was worried my it Hong would wake hubby due to start an early work shift and where I'd got into a state I felt tingly and dizzy and fell down the stairs at 37 weeks preg on the tue... hosp declared me fine to go home after a day in hosp undergoing heck then the fri (3days later) I came over dizzy from the pressure of the itch and burning and went into labour most likely triggered by the fall down the stairs.
After birth wow skin was best it's been for 12 weeks so again what happens at the point of birth to make your skin amazing with no pain or itching!?
I've read every post on here and separately google every diet mentioned cream etc and am going to try everyhing. I'm currently under a dietician and we are cutting put various gongs each week to see if certain triggers make a difference.
I can't understand it... everyone says I have lovely skin but it's not always something you can see. I mean my arms have red bumps under the skin which get darker and angry when having an itch attach and thr bumps then rise but the thighs mostly there's nothing to see they look normal most days even when having an itch attack.
I can't bath or shower for long water triggers mine, as does my sweat, friction I. E. Changing clothes... recent tests undergone show I'm allergic to cinnamon and cinnamon in most body products however even after cutting these out there isn't a huge improvement. It effects every aspect it breaks my heart when I'm to sore to hold my 4 month old baby so have to sit him on the bed to feed him and hold him with one hand feed woth the other because sitting on my leg will cause me so much agony and pain for hours on end. I don't remember the last time I had a full nights sleep more than 4-5 hours because of the rash, I can't remember waking up and feeling non itchy othet than when I was preg!
Being on holiday in a hot country Bizarly I'm norm good after 2 days but once home it starts again it's so bizarre yet if I get too hot here in the UK I get an itch attack. My colleagues moan when I open the window but sometimes I need to cool down to calm my itch.
I'm currently taking 2 x citorizone twice a day morn and night and portion every 4 hrs.
I don't expect a cure but somehow or anything to just be able to have a few good days and even 1 or 2 decent nights sleep a week to recharge and be able to deal with things better as being a constant zombie doesn't help, I don't know why my husband puts up with me it makes me so moody and snappy when I have an attack and effects our sex life at times when it's really bad.
It started slightly prior to my thyroidectomy when diagnosed with overactive thyroid I was on carbimazole medication It seems a coincide ce to start at this point. Perhaps as some mention stress plays a part which is why some days are better or worse than others.
If I won the lottery 1st thigh I'd do is get a doctor to spean a few months with me seeing how my daily life is effected to see if they can see I'm doing somehing that brings it on or not... it's just so bizarre. I'm a good kind hearted person but this brig me down so much.... really am at the end of my tether....
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