Everything fused

Posted , 9 users are following.

Hi, this is the first time I've had the guts to post, although I've been following messages for some time now.

I'm 48 yrs and my LS has got worse in past 6 months. I noticed that everything has fused up so now there is no clear definition between any of my labia and clitoris. It's permanently itchy and sore.

I've got the steroid creams and emollient but I don't seem to keep control over it unless I use steroids every day.

I feel really down about it all as my sex life is almost non existent. I can't enjoy intimacy with my husband any more. I do it for him as I know I'll have days of pain and discomfort afterwards. The worst thing is this is such lonely disease as you can't discuss it with anyone! I'm also really worried as I've got to switch HRT as the treatment I am currently taking has been discontinued. Last time my HRT was switched I got a huge flare up of my symptoms.

I'm messaging as I feel so alone with this condition.

thanks

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  • Posted

    Hi Ginny,

    Have you looked into bathing in Borax? A lot of women do and many have unfused from it. I do it 3x a week and I haven't had many symptoms of LS. There's a facebook group called Healing Through Borax For Women With Lichen Sclerosus and Skin Disorders that's really helpful.

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