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  3. Fibromyalgia Syndrome

Evil headaches?

Posted , 4 users are following.

remygirl
remygirl

I have recently been diagnosed with fibro and I have my doubt's but who knows. However, for the past three weeks I have had really bad headaches. Different from migraines that I have known very well. They do cause nausea and last all day but they also give me weird random head wavey sensations. It feels like I pass out but I'm awake, I dont fall or anything. Its very weird happens a lot when I walk around. These head sensations happen more if I eat sugar too so I just dont. I can't exercise or anything. When i walk on the ground alot it seems squishy so ill hit my foot to it to bring back the hardness..Are these fibro headaches? Or something else? I'm just looking for any insight . not sure where to look for it. Thanks !

0 likes, 7 replies

7 Replies

  • youngatheart1
    youngatheart1 remygirl

    Posted

    Hi, I have fibro and osteoarthritis and literally just posted about similar feelings, I feel like I am going down in a lift when walking or sitting and I feel dizzy for a second and then jerk back to reality as if I am going to faint.  My head is really bad at the moment and painful on the top and back so probably muscle related. To be honest everything is put down to fibro but most doctors do not know who to help, it is like IBS a label I think which is not helpful if you are going through it.
    • remygirl
      remygirl youngatheart1

      Posted

      I'm sorry you are also going through this, but I feel relieved to not be alone. Everything you said is exactly how I feel! I am going to get an MRI though just to make sure nothings up there. Have you found any relief?

    • youngatheart1
      youngatheart1 remygirl

      Posted

      No nothing, helps. I cannot take any kind of anti inflammatory tablets so just have to put up with it, harder some days than others. Let us know how you get on with MRI. Take care
  • sukes
    sukes remygirl

    Posted

    Hi Remygirl,

    I'm wondering if you are taking any meds for your Fibromyalgia.  Can I ask who diagnosed it by the way. 

     

    • remygirl
      remygirl sukes

      Posted

      I'm not I developed a weird medicine sensitivity, I have been staying holistic. I take a lot of adaptogens, and eliminated almost all the yummy food. My primary diagnosed me, I asked to see rheumatologist and he said they dont do fibro, so I just asked for neuro for the head instead.

  • sukes
    sukes remygirl

    Posted

    Well if you are not taking any meds, then that is something that can be ruled out.

    My GP referred me to a Rheumatologist as he said they were specialised in this kind of problem.  She (Rheumy) did lots or tests to rule out other things before giving the diagnosis of Fibro.  I really hope that things improve for you soon. x

  • linda51222
    linda51222 remygirl

    Posted

    Hi,

    You are not alone in the things you describe , I can understand why you are so concerned, as you don't have any real answers, I also get the funny  feeling in my head and am pretty sure as someone has already said that it is muscular made worse by us tensing up our bodies against it, the best person to give you a proper diagnosis is a rhuematologist as Sukes has said.I also suffer from intolerences to many meds.

    God luck  L x

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