Excessively high TSH levels
Posted , 4 users are following.
Type 1 Diabetic , thyroid medicine all my life , down to 97 pounds , with severe muscle pain
0 likes, 11 replies
Posted , 4 users are following.
Type 1 Diabetic , thyroid medicine all my life , down to 97 pounds , with severe muscle pain
0 likes, 11 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
JenniePoobah becky34776
Posted
What kinds of tests have been run? How is your body chemistry doing, and your complete blood counts? How are they treating your thyroid?
Bad muscle pain can be from many causes. Too little oxygenation, nutritional deficiencies... and inadequate thyroid limits the creation of energy at the cellular level (it slows metabolism, which likewise slows all processes).
I'm sorry you're suffering. I hope you find some answers quickly.
Jen
becky34776 JenniePoobah
Posted
Everything was normal except TSH it was 48.4
I feel ramped up not sleeping because I wake with thighs and hips hurting bad , they recently switched me from synthroid to Armour Tabs but blood work got worse
So back on Levothyroxin
JenniePoobah becky34776
Posted
That's very high, like you said. Is your doctor an endocrinologist or a general practitioner? Do you know if you have hashimotos or nodules?
becky34776 JenniePoobah
Posted
Regular doctor , he is sending me to a endocrinologist , just not fast enough for me , I'm scared because the pain is so intense ,
JenniePoobah becky34776
Posted
So.. I get pretty severe muscle pain too. However I don't have type 1 diabetes, so I don't know what your restrictions are or what you tolerate well. Obviously help from a dr is preferable, but not all want to prescribe which can leave you in a no man's land while you try to get everything diagnosed and controlled, which can take a long time.
This is what i have been doing. I take prescription doses of ibuprofen.. 800 mg twice a day morning n night... but you have to go up slowly in increments until you find the lowest dose that works for you. I find for me it works better than Tylenol, nsaids like Aleve, and even Vicodin.
I use ice packs. 20 min off, 20 min on. Cloth between ice pack and skin. Topical lidocaine
JenniePoobah
Posted
Topical lidocaine can help.. such as some back relief and sunburns products have.
If that isn't enough, see a pain specialist. They can provide special shots
Good luck!
icecool JenniePoobah
Posted
icecool becky34776
Posted
Hope this makes sense.
. I am going to get some fingerprick kits sent to me s that I can monitor the tsh asap and take contriol of this stupid illness without messing about with drs and tests under the NHS.
Are fingerprick TSH reliable as venous samples I wonder?
icecool
Posted
meant to say as hot water bottle is useless.
JenniePoobah icecool
Posted
I'm not a doctor, but something is causing your lab values to stay high despite levothyroxine. There are a lot of things it could be... an endocrinologist needs to evaluate it. Maybe it's a pituitary problem, maybe a thyroid problem, ... the possibilities Need to be ruled out. Only then will you know what needs to be done. I had a thyroid ultrasound and biopsy. Not a big deal. They thought I had a nodule, but it turned out to be hashimotos. It just takes some patience and persistence. It's really important they figure it out though, because your thyroid hormone levels affect a lot of systems in your body.
All my best, Jen.
JenniePoobah icecool
Posted