Excruciating pain

Posted , 7 users are following.

I have symptom that are very similar to TN but my Dr won't recognise this. I have deep stabbing pain ( like pulsating electric shock) deep behind my ear with sensitivity in the surrounding area and a burning sensation to my ear which came out in blisters this week. The pulsating pain is so bad I get about 2 per min. This is the second bout I've had.  Been to see my Dr 3 times in the last week, my ears are fine my teeth ok, he has now prescribed me with Lyrica Pregabalin twice a day. Need some advise please.

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14 Replies

  • Posted

    Are you sure its not shingles?
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    • Posted

      Yes that was my thought Lee, with the mention of "blisters."

      I think the ear shingles is called Ramsey Hunt syndrome?

      its still related to the nerve pain ,sian ,which would cause skin sensitivity and burning and stabbing. Try and get the Doctor or nurse to swab the  blisters and get tested for the virus ASAP!

      Then they can get you on anti viral therapy. 

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  • Posted

    Hi Sian

    could you please just tell us a bit more about the blisters, like when you got them and where' they are on your face/ear?

    i know you said your doctor ruled it out but could you tell us how it was ruled out?

    by a swab test?

    if it is unrelated to Ramsay Hunt syndrome/ ear shingles it could be Geniculate Neuralgia. You would need to be referred to a Neurologist for a consult.

    how are the anti seizure meds going?

     

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    • Posted

      Hi thanks for your response, this episode started a week last Wednesday but I was off work on holidays, went back in on Tuesday in absolute agony (shouldn't have been there). The electric shock type pains were excruciating as the day went along the right side of my head became hotter and by 3pm the outer edge of my ear had 4 blisters an hour later the ear and the side of my head was covered in blisters, had an appointment with GP that evening, he queried Shingles told me to visit surgery again on Thursday, by this time all the blisters had gone. He advised me it was the way the body sometimes tries to cool itself down.

      On Friday I had to visit the Dr again as it was getting unbearable so they have now changed my meds to Tegretol, but these are making me feel nauseous. Appointment with neurologist has been made, bloods taken. 

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  • Posted

    Hi, I would say it's shingles too. Try to see a different GP if you can and ask for a course of anti-virals like Acyclovir. For the pain you need something like Gapapentin or one of the other neuropathic pain killers.

    Good luck.

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  • Posted

    Sian, are you going to general practitioner or neurologist? My go sent me to neurologist under his advise. Let me know please.
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    • Posted

      Hi, yes I'm just seeing my general practitioner at the moment. I have been referred to a neurologist. They have changed my medication to Tegretol. 

      Im still off work as tablets are only taking the edge off the pain.

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