Excruciating pain when going to the toilet, cold sweats, almost passing out and being sick???

Posted , 5 users are following.

hi, every now and then i wake up with pain and needing to empty my bowels. it gets worse and worse until i feel like i am in labour. i have to literally breathe through the pains. it comes in waves as my bowel empties, i am scared to death as i know what is coming. my vision goes like i am going to pass out, i feel extremely lightheaded. i feel really sick like i am going to throw up, my hands and feet are tingly. i am dripping in cold sweat, i can hardly talk and i cannot walk afterwards. i have to lie down on the floor until i have recovered. i have been told by an expert that i have endometriosis and i wonder if anyone else has experience? my gp was shocked when i told her how i felt!

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6 Replies

  • Posted

    Did that expert perform a laparoscopy? A lap is the only definitive way to know about endo.

    Many serious conditions can cause your symptoms. Get them checked out. We're not docs and cannot diagnose you.

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  • Posted

    hello I'm 38 and was first diagnosed with endo 8 years ago .... with my latest flare up last year I am undergoing zoledex injections monthly while I wait for a hysterectomy (usually only given in a six month course) the last couple of months I have been back to square one with the pain!

    The doctors have given me strong painkillers again! I have had a couple of episodes just like you've described and after consulting my gp she has said it's just my bodies reaction to the extreme pain!

    But I would check with your gp in case there is anything else going on.

    Take care

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    • Posted

      hello, i'm glad you have your appointment booked and I hope you get some answers!

      I don't want to be a downer but it's nice to talk to someone in a similar situation..... I have since been to see a new consultant and she has informed me that the course of treatment my previous consultant had me on was wrong!!! I have other underlying issues with my bone density so I should never have been on the zolodex at all so I'm back to square one !!

      I have a scan on Monday 13th so fingers crossed I get some answers too!!

      Good luck and stay strong xxx

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  • Posted

    hello, ive had exactly the same. ive now been operated on twice and the pain going to the toilet has been due to the extensive adhesions to my bowel. i hope you are taken seriously by clinicians you see and it is sorted out for you. best wishes

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    • Posted

      thank you so much! i am so relieved! i have found noone who has been the same as me! got appointment at hosp on 23rd jan. so hopefully get some answers! x

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